Connect with others who understand.

sign up log in
About MyEpilepsyTeam
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Does Or Has Anyone Ever Felt Embarrassed About Telling Someone About Their Seizures?

Does Or Has Anyone Ever Felt Embarrassed About Telling Someone About Their Seizures?

Or on another note, has anyone ever been a little scared of telling someone you feel like you’re about to have one but end up not? Sometimes I feel like I shouldn’t tell my parents or sister because then they’re going to overreact a little after the feeling went completely away.

A MyEpilepsyTeam Member said:

Right they will never understand until they have to go through it..

posted over 3 years ago
A MyEpilepsyTeam Member said:

I agree 100% that regardless if you have epilepsy or not we can achieve our goals (just have to have opportunities and know how)

posted about 1 year ago
A MyEpilepsyTeam Member said:

I like telling people that I'm epileptic. People ask me all sorts of questions and teaching people that its not always what they think.

posted about 3 years ago
A MyEpilepsyTeam Member said:

Yes I always feel embarrassed to say that I have seizures cause I don't like the treatment of the other people.. I don't be wanting to scare other people...

posted over 3 years ago
A MyEpilepsyTeam Member said:

I'm very open about my condition. I don't have a bad case but my short term memory, headaches and tiredness are my issues. My MRI shows damage on the temporal lobe. I had night seizures that my husband luckily caught and I thought my deja vu was normal or the auras were normal. I had terrible panic attacks that I thought I was going to faint. unfortunately typically people associate epilepsy with grand mal seizures and there is not enough information shared about the different types of symptoms and signs of epilepsy. It's hard to explain that my brain can't retain too much information at one time to my employer. Or I can't find the right words when I'm on the phone.
My friends have learned a lot from my research and reading. I wish employers did some research too.

posted 7 months ago
Already a Member? Log in
MyEpilepsyTeam My epilepsy Team

Thank you for signing up.

close