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One time when she is having such sharp pains in her head . She said it feels like that part of the head is going to explode. I rub gently on the lump . And it esses the pain . The next time it is in a different spot. Not sure what it is or what to do about it . Any recommendations?
What have you learned about your wife's symptoms?
Tim, I have seizures just about daily I have times when I'm extremely clumbsy and my thoughts and somewhere else. When that happens I lay down. I have big seizures where I just collapse and am out for… read more
I have all & nothing will help just deal with it sorry 😞
When it comes to medications and time changes do you bounce back and forth or ignore the time change in regards to keeping your meds steady ?
To answer Your question I don’t make any changes. I take my medication at the regular times I always have. Of course if You are concerned about this just call ☎️ Your Dr. and get their directions… read more
how likely is a seizure to happen while weaning off one medication and increasing the dose of another? my son is being slowly weaned off keppra
and his zebinix (aptiom) is being increased from 800mg to 1000mg per day.
I feel a seizures is unlikely to happen when you are dropping the dosage of medication which you are taking, I done this back in February and only side-effects I had was feeling strange for about 5-7… read more
Traveling to Ireland from Philadelphia on Monday for a week. I take lamictal XR once daily at night around 9pm but that is 2 am Ireland time so need to adjust timing of medication and then adjust again when I return. Appreciate hearing how others have dealt with this. I should have asked my neurologist but skipped my mind and with the weekend won’t be able to get in touch in time. Thanks!
The few times I road across the ocean , I never got sea sickness. If the time zone changes, I change with the time Zone. May take a day or two for your body to adjust.
When someone asks me, "What does epilepsy feel like?" I describe it as "having an invisible stalker with a TASER" and/or "being controlled by a sadistic puppet master". I also tell people my brain has been "rewired by a drunken technician".
Cathryn that is exactly what happens to me. I can hear and know what people are saying just can’t speak back. Get like an intense hot flash and nauseated. About 2-4 every 15-20 days. No meds have… read more
Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?
I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more
I was diagnosed with TLE a year ago.
I was having focal seizures but now I believe I may be having absent seizures. I had a seizure last month and this seizure has made me feel a lot different and it’s my 3rd seizure since 12/2023.
I am on lamictal and have an appt with my neurologist about this but I am curious if anyone else has experienced this?
I began having gran mal seizures at a very young age then they changed into complex partial seizures when I was a teenager. When I had the Vagus Nerve Stimulator device installed my seizures changed… read more