Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

I am currently taking 1500 twice a day of Keppra and 150 of Vimpat twice a day. I have vision and fatigue as my two major side effects with Keppra and have talked with my doctor about switching medications. I would continue with the Vimpat, but switch my Keppra to either Lamictal or Briviact. I have done research on both, but would like to hear experiences people have had with both before I make any decisions.

Thank you in advance, I appreciate it!

Does epilepsy cause mental and mood disorders, or does anti seizure medicine cause the disorders. Please elaborate?

I certainly did not know this until a few minutes ago --when I was researching what international medical committee decides why the label of "mental illness" is used rather than "mental disability" for those that are not labeled as mental disorders (and I did not even know that the mental disorders were not listed as a sub-group of the overall group known as mental illness rather than being in a separate category.

https://www.ncbi.nlm.nih.gov/books/NBK20369/

Did any of you know about this… read more

Hi there,
There’s a big debate in an epilepsy support group on FB about these terms: seizure disorder, Epilepsy and neurological disorder. Is epilepsy a symptom of a neurological disorder? What do you think the definitions of these are and why? I do know that different countries have different definitions. I have my own idea but I’m curious to see what everyone else thinks.🙂

When I first started reading, I was angry b/c I thought the article was going to say that everyone has brain fog and memory problems, so it would minimize what we go through. But then I saw it as an opportunity to help others understand what we go through, COVID or not, as it focuses on the brain and cognitive impairment.

https://www.theguardian.com/lifeandstyle/2021/a...(Phone number can only be seen by MyEpilepsyTeam users)

Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?

I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!

Ever since my first seizures, its been so much harder to focus on and/or complete any tasks. I've read a little about the two and according to epilepsy.com, it is a lot more common for adults with epilepsy to also have ADD/ADHD. Has anyone had indicators of either of these and approached your provider(s)?

Site:
https://www.epilepsy.com/learn/challenges-epile...