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Has anyone have any serious issues with VNS surgery. I already had a previous RNS type of surgery but this time they offered VNS and worried. I actual started working a second full time job to keep a reason to delay. What do you think?
Happy holidays to everyone and your loved ones!
That is something I'm not familiar with. I wish you the best regardless of what you decide.
Has anyone had VNS surgery and how long does it take to slow down your seizures or even stop them. I am planning to get that surgery but afraid if it doesn't help it will still be on the biggest nerve of my body. I workout, jog and have jobs I have to pick up heavy things. Can anyone please help. Spring is coming in the Northeast ☀️ Thanks in advance!
Thanks for your response!
I have two full-time jobs and I am always around a lot of people. I work in the Boston Garden on weekends and planning to star in a movie documentary. I had a small seizure in front of a lot people, I was walking around in different directions and even jump over a table. I never wanted to talk about it but, this website and group got me ask about it. I am little scared to go back in front a lot of people to focus in on a movie, do you think people will look at me weird when I go back?
Thank you for the hug.
I had the cell number to call for my previous Neurologist. I can communicate with MyChart at Yale Neurology. If it is really big, I will call the office. I also have Nile to keep track if my meds were… read more
I have tried many times to tell him how much this group helps me with my seizures. You don't have to even say anything. Just read what others are going through. I wanted to know if there is a separate group of people that deal with the care of a person who epilepsy. I think he is afraid to write on the one I have because he feels I might see it. I told him you don't have to use your real name or show your picture. He always says no
My husband supports me ! I stay quiet a lot because he is overworked ! Important matters we discuss! I give you a hug!
Hi everyone would really appreciate any advice on my situation,
My mother had a brain tumor removal 7 years ago and one year after that she had her first seizure. She’s had them on off after that for a while, but they stopped for about the past two years (knock on wood)
Her seizures would be triggered by fatigue or lack of food/glucose.
Has anyone had this similar experience and had a colonoscopy done?
I’m pretty worried about the prep before the procedure because as you know you have to… read more
Hi Arj, as I separately posted, recently lived through similar. Whilst taking the solution to clear colon, resistance that medications provide to a seizure is significantly reduced. This is because… read more
My family IS the welfare check! My mother is 72 years old, but if I don’t answer my phone she’s in the car, on the phone with my daughter and they are both on the way to my house! I’ve learned to take… read more
- no idea what's going on - where you're supposed to be or when you're supposed to be there? I'm afraid.
That’s happened to me before. After this last breakthrough seizure, I couldn’t remember what my friend and I were talking about or how long I had been sitting there, but some of it eventually came… read more
Sometimes I have to raise my voice and let them know, I got this , I'ma go M.I.A after holidays cuss people think I need them !, Show em better than I can tell em .
I depend on myself all the time. But I always need my family I count on them to help me out when I need it the most.
My seizures are nocturnal
💜