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I'm tense when wake up, have wicked dreams, get a headaches, when I wake up, and I don't sleep all that well but when I do I crash out, and I sometimes wet myself its so imerirasing I'm finally opening up and spilling out my last dogo God rest his loving soul he jumped on top of me when I was having a really bad seizures and tried to attack a parimetic hope everyone has a great day
Well Michael it's nothing to be ashamed of or to tell. Cause I still remember not that long ago when I used to do the same thing every night. That is a seizure in your sleep.
Hi All
Has anyone been on Keppra and had Lamictal added? My son was fine up until last week he was at 75mg twice a day of lamictal and seemed to get a bit tired the second week after each dose increase but last week he was very tired and ended up missing school. He doesn’t seem to be getting any better his energy levels are so low. As of today he is at 100mg twice a day plus the usual 1500mg of Keppra twice a day. When I spoke to the epilepsy nurse at the start she said that Lamictal usually… read more
Questions are good. Who knows a question you ask could have a b solution that's helpful.
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
The child can’t take a nap or go to sleep rather her meds is taken because she steady having seizures for less than minute in sleep daily. And it all started when doctor recommended we go down on doses for kreppa.
When you see the Dr. ( Neurologist / Epileptologists ) in your next appointment, let him/her know about your about the seizures starting back up. The Dr. Can then check your blood levels and… read more
I wonder about that, cause my meds were changed in 1994 or around there, but after the test and treatment and such etc, my doc has it where I am ok with how it is, It took some time to get there and such, but what do you think, I'd think I might but it would depend, a lot of stuff to consider and ask yourself I think, my current condition is more stable than it was before, and do I want to experiment with my condition and such etc and it may work out, but what if it don't, Then getting it back… read more
Those of you that have had epilepsy for a long time, how often do you need to change medication? Does one work for quite a few years and then your seizures come back, and you have to try a new med? Is it common for people’s bodies get used to the meds?
I'm sorry to tell you this but be prepared to be taken off a med put on new one, possibly sometimes more than one med. Reason doing so is in search which one or combo will work best for you. I came… read more
Initially, I was my own worst enemy. Not anymore!
I agree
I think that I am, i know that there is not a cure for, but I I've accepted mine and it does make it easier knowing what I have to deal with, what do you think and your thoughts about it?
Learned to live with it. It's great to hear this is being treated just like anything else in life from birth. LEARNED TO LIVE WITH NOT CONTROLLED TO LIVE WITH!
Whether you’re increasing or decreasing any of your meds, how long do you feel it takes your body to adjust to the new dosage?
Getting used to a new medication can take months, especially when one is titrating up the dosages every 2 weeks, which is how my Neurologist works it with mine. I was on Topiramate for 7 months and… read more
Has anyone have any serious issues with VNS surgery. I already had a previous RNS type of surgery but this time they offered VNS and worried. I actual started working a second full time job to keep a reason to delay. What do you think?
Happy holidays to everyone and your loved ones!
That is something I'm not familiar with. I wish you the best regardless of what you decide.