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Does Anyone Get Pinches

A MyEpilepsyTeam Member asked a question 💭

A very sharp pinch on any part of the body for instance stomach, back, or legs

A MyEpilepsyTeam Member

Well when I was younger having seizures. I remember that it felt like my whole body would tingling like the best way to say it. Someone was tickling me. But it wasn't funny.

Has Anyone Awakened Tangled?

A MyEpilepsyTeam Member asked a question 💭

Legs tangled in the front, arms tangled in the back, while lying on your stomach.

A MyEpilepsyTeam Member

I lay every which way

Can Plain Old Advil Help You Sleep?

A MyEpilepsyTeam Member asked a question 💭

Twice I’ve used it since the insomnia has started. I think it helped.
When I get in bed, I’ve noticed my legs are stiff, and sore. Like I had done leg exercises at the gym.
With all the medication I’m on. My physical pain “sensitivity” is all screwed up. That’s a whole other story 😜

A MyEpilepsyTeam Member

Everyone is different. Some people may fall asleep . Others may not.

Im Now On 2 Different Seizure Medications Due To Me Having 2 Grandmal Seizures In Less Then A Week Back To Back Now On Keppra And Valproic.

A MyEpilepsyTeam Member asked a question 💭

How effective is the valproic medication?

A MyEpilepsyTeam Member

I took valporic acid and had to stop because it tripled my ammonia levels which would have led to liver damage just like Rusti. It did control my seizures. Went back on phenobarbital.

Anxiety And Depression And Seizures?

A MyEpilepsyTeam Member asked a question 💭

I already shake my leg and now I’m starting to rock back-and-forth and I miss out on about 3 - 5 of my day I lose it every day

A MyEpilepsyTeam Member

I have the depression and anxiety it is heard

What Do You Think: Do Our Seizures Get Worse Over Time?

A MyEpilepsyTeam Member asked a question 💭

Or do our meds become less effective over time? Or does something else cause our seizures to come back after they’ve been under control?

A MyEpilepsyTeam Member

Some meds I was on became less effective over the years. They worked well for 6 or 7 years and then I switched. What was working well in high school and college was trileptal and zonegram. So when… read more

What Kind Of Pain Do You Get.

A MyEpilepsyTeam Member asked a question 💭

Hi I have night time seizures and my arms and legs feeling bruised and a little tingly the day after but I always have back ache and my hands and feet hurt most of the time. They are particularly bad after work (I'm a sewing machinest making curtains ). Does anyone else get this generalised pain .

A MyEpilepsyTeam Member

It’s because you’re muscles contract during a seizure

What Do You Consider Epilepsy?

A MyEpilepsyTeam Member asked a question 💭

I found a site called Epilepsy Disease and just that name I find offending. Epilepsy is a medical condition, its not some disease you can catch. What are your thoughts on this

A MyEpilepsyTeam Member

It does frustrate me too. The medical field calling Epilepsy a disease. I see it a lot myself . I don’t consider Epilepsy a Disease. I consider it a Disorder , Conditions , and then there are other… read more

Mostly At Night, I Will Black Out And Have Difficulty Recalling What Happened That Day. It Does Come Back Eventually. Absence Seizures?

A MyEpilepsyTeam Member asked a question 💭
Types of Seizures and Their Symptoms in Epilepsy Read Article...

Mostly At Night, I Will Black Out And Have Difficulty Recalling What Happened That Day. It Does Come Back Eventually. Absence Seizures?

A MyEpilepsyTeam Member asked a question 💭

B

Types of Seizures and Their Symptoms in Epilepsy Read Article...
A MyEpilepsyTeam Member

And they may need to adjust your dose or switch you completely. Keppra is definitely a go to drug for many seizure types. So is zonigram. That doesn't mean it works for everyone. If you feel like… read more