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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Does Anyone Get Pinches

A MyEpilepsyTeam Member asked a question 💭

A very sharp pinch on any part of the body for instance stomach, back, or legs

A MyEpilepsyTeam Member

Well when I was younger having seizures. I remember that it felt like my whole body would tingling like the best way to say it. Someone was tickling me. But it wasn't funny.

Has Anyone Awakened Tangled?

A MyEpilepsyTeam Member asked a question 💭

Legs tangled in the front, arms tangled in the back, while lying on your stomach.

A MyEpilepsyTeam Member

I lay every which way

Anxiety And Depression And Seizures?

A MyEpilepsyTeam Member asked a question 💭

I already shake my leg and now I’m starting to rock back-and-forth and I miss out on about 3 - 5 of my day I lose it every day

A MyEpilepsyTeam Member

I think a little here and there, and not a prob with really, I try and stay pos and hang in there, but i do my daily routine of prayer and bible study which does makes me calm with what is going on, I… read more

Do You Seem To Be Going To The Bathroom More Than Before When You Were Younger, Just Curious,

A MyEpilepsyTeam Member asked a question 💭

I myself think so, but I think it's a combo of things, my current condition, my age, meds and a natural factor also, i didn't tell my doc about it, since I thought those things I mentioned here, other wise I would of, what are your thoughts on the ?

A MyEpilepsyTeam Member

Yes, due to the high blood pressure medication and increase in water.

Can Plain Old Advil Help You Sleep?

A MyEpilepsyTeam Member asked a question 💭

Twice I’ve used it since the insomnia has started. I think it helped.
When I get in bed, I’ve noticed my legs are stiff, and sore. Like I had done leg exercises at the gym.
With all the medication I’m on. My physical pain “sensitivity” is all screwed up. That’s a whole other story 😜

A MyEpilepsyTeam Member

Everyone is different. Some people may fall asleep . Others may not.

Im Now On 2 Different Seizure Medications Due To Me Having 2 Grandmal Seizures In Less Then A Week Back To Back Now On Keppra And Valproic.

A MyEpilepsyTeam Member asked a question 💭

How effective is the valproic medication?

A MyEpilepsyTeam Member

I took valporic acid and had to stop because it tripled my ammonia levels which would have led to liver damage just like Rusti. It did control my seizures. Went back on phenobarbital.

Hi Guys, Have Anyone Experienced Twitching Of Legs And Arms Just Before Falling Asleep In Conjunction With Clinic Tonic Seizures?

A MyEpilepsyTeam Member asked a question 💭

Adam has started to have seizures a year ago, before they were just once every 2 weeks and he would have one: then he started sodium valp and when once a month is time for the seizures to come, they will be many all in a row and there will be no chance for him to return conscious from post ictal phase: we then need to go to the hospital and get him sedated
Together with this deteriorating, he is now experiencing a twitching of his legs and arms as he falls asleep. He brakes my heart seeing him… read more

A MyEpilepsyTeam Member

Thank you for replying ❤️

What Do You Think: Do Our Seizures Get Worse Over Time?

A MyEpilepsyTeam Member asked a question 💭

Or do our meds become less effective over time? Or does something else cause our seizures to come back after they’ve been under control?

A MyEpilepsyTeam Member

Some meds I was on became less effective over the years. They worked well for 6 or 7 years and then I switched. What was working well in high school and college was trileptal and zonegram. So when… read more

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What Kind Of Pain Do You Get.

A MyEpilepsyTeam Member asked a question 💭

Hi I have night time seizures and my arms and legs feeling bruised and a little tingly the day after but I always have back ache and my hands and feet hurt most of the time. They are particularly bad after work (I'm a sewing machinest making curtains ). Does anyone else get this generalised pain .

A MyEpilepsyTeam Member

It’s because you’re muscles contract during a seizure

What Do You Consider Epilepsy?

A MyEpilepsyTeam Member asked a question 💭

I found a site called Epilepsy Disease and just that name I find offending. Epilepsy is a medical condition, its not some disease you can catch. What are your thoughts on this

A MyEpilepsyTeam Member

It does frustrate me too. The medical field calling Epilepsy a disease. I see it a lot myself . I don’t consider Epilepsy a Disease. I consider it a Disorder , Conditions , and then there are other… read more