Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign Up Log In
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Houston, TX

I found a site called Epilepsy Disease and just that name I find offending. Epilepsy is a medical condition, its not some disease you can catch. What are your thoughts on this

June 6, 2024
 · 
Reactions
A MyEpilepsyTeam Member

One thing that it doesn’t have, like many diseases, is a cure

June 6, 2024
A MyEpilepsyTeam Member

It does frustrate me too. The medical field calling Epilepsy a disease. I see it a lot myself . I don’t consider Epilepsy a Disease. I consider it a Disorder , Conditions , and then there are other conditions related to Epilepsy that are Syndrome.

I to this day, don’t understand why they call Epilepsy a disease

June 9, 2024
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member a lot of people with epilepsy on some days have normal eegs. Me personally they say I have seizure activity on all my eegs which started back in my 40s. Some are worse than others. Lately it has been less but still there. I use to have a normal eeg here and there from my 30s till it changed in my mid 40s but that's also when my seizures changed and I was having 5-6 a day of grand mals. That's when my entire life changed. I'm 66 now and hope this change again of few seizures stays that way for the rest of my life. It has changed numerous times over my life.

June 7, 2024
A MyEpilepsyTeam Member

Until someone has a seizure and wake up dazed and embarrassed (and I hope they don't ) they will never ever know how hard it is to live with Epilepsy.

June 6, 2024
A MyEpilepsyTeam Member

That's what my medical ID bracelet says. Epilepsy.

June 7, 2024

Related Questions

View All
A MyEpilepsyTeam Member asked a question 💭
Sussex, NJ

A MyEpilepsyTeam Member asked a question 💭
Adelaide, AU

to

A MyEpilepsyTeam Member asked a question 💭
Brisbane, AU