Tegretol and epilepsy | MyEpilepsyTeam

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Top 10 search results for "Tegretol" in Q&A. To see all results and access other features, sign up for free.

Carbatrol

A MyEpilepsyTeam Member asked a question 💭

I've been put up to 1200 mg per day of tegretol retard. This is the maximum dose and seems very high - has anyone else been on such a high dose and did you suffer any side effects?

A MyEpilepsyTeam Member

when dr put me on Brand tegretol mg 200 I was taking 5 a day 2 in morning 3 night then it made me blury so called dr told him then he drop it down to one 400mg in morning and one at night 12 hrs apart… read more

Has Anyone Become Immune To Tegretol Or With Their Medication?

A MyEpilepsyTeam Member asked a question 💭

I have been on Tegretol for 17 years since 2003 a year after my diagnosis with epilepsy, I've noticed over the years that I've had more side effects and seizures than I once did when I first was put on it, my doctors have never changed it. Has anyone else experienced that? Thanks in advance :)

A MyEpilepsyTeam Member

I been on Brand Tegretol and Brand Lamictol and since been 25 yrs sz free

Tegretol And Memory Loss

A MyEpilepsyTeam Member asked a question 💭

Hi all. To those using Tegretol. Did your memory worsen after you started to use it? I am on 200mg am and 400mg pm. Thanks.

A MyEpilepsyTeam Member

I was getting monthly blood tests so it was all monitored, but I'm going on Keppra now so I will be tapered off the Tegretol.

Dilantin

A MyEpilepsyTeam Member asked a question 💭

I took Dilantin for a few years as a child. I'm not sure why my doctor switched me from Dilantin to Tegretol, but I'm assuming it's because I broke through on it. I really liked it, but I suppose what I'm on now is best for controlling my seizures.

A MyEpilepsyTeam Member

Since then, I've been on numerous forms of Tegretol,, Tranxene for a short time, and currently, Leviteracetam(Keppra, in addition to Tegretol). Chelsey, what does VNS stand for?

Keppra

A MyEpilepsyTeam Member asked a question 💭

Can they make you feel itcy

A MyEpilepsyTeam Member

Actually, there are recommendations but no absolutes when it comes to medications and any other treatments.

I have friends on here who have been on Tegretol for as long as I have been alive (55+… read more

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Just Curious About This ❓ Below And Not Nothing Against It Or Anything Else Like That? Or On Anyone Else Here And Such Etc Or The Med Field?

A MyEpilepsyTeam Member asked a question 💭

As for our own conditions and illnesses and diseases etc which I hope are progressing and getting better, as for the meds thing I mentioned in the,? This is kinda what is going to happen when you take that med, I have some slight little effects of them, a maybe a medium effects with also now and then, but what about the effects that are the ones you didn't expect and you went through the effect of, what do you do about that if it happens,then what? Just curious? Because I look at ok I have a… read more

A MyEpilepsyTeam Member

KathrynJordan, I am glad you found a medication that helps you control your weight also. Tegretol alone made me sleepy, even in the day time. So now I take Tegretol CR (Controlled Release).\ and I am… read more

High Tegretol Levels

A MyEpilepsyTeam Member asked a question 💭

What has been the course of action your doctor has taken if your tegretol levels are high but it’s controlling your seizures? Afraid what my Dr will tell me since tegretol is all I have ever taken and I am not mentally or emotionally ready to try a new drug.

A MyEpilepsyTeam Member

I was on tegretol for a few years but went to a cocktail as I was causing cognitive issues & made me dizzy. So MD cut dosage & supplemented w/ Phenytoin. Which held me,

Tegretol/Carbamezapine

A MyEpilepsyTeam Member asked a question 💭

Hey everyone
I've been on tegretol/carbamezapine in various doses since I was about 15. I am now 27
I've been starting to think more about side effects, dependency and whatnot as I get older. Does anyone else worry about this? Like what the drugs are doing to your body? I still have seizures roughly once every two weeks, maximum is usually 4 a month, but I have started looking into alternative treatments as well, like acupuncture and the keto diet. My neurologist mentioned to me that if I… read more

A MyEpilepsyTeam Member

I was advised to iincrease to 600mg morning 800mg in November 2018. It's now March 14 2019. I started having increased seizures from once a month to many more some days having 4. So when I saw my… read more

Pregnancy And Medication. What's Your Story? How Did You Make Your Decisions On Pregnancy, Medication And Breastfeeding?

A MyEpilepsyTeam Member asked a question 💭

If you're a mother, I'd like to know your pregnancy story. Did you decide to have kids? Did you decide not to? What was your thought process when deciding to keep taking or stop taking medication? Did you decide to breastfeed or not?

I'm scared about having a child that develops problems their whole life due to my taking medication. I'll blame myself if that happens.

A MyEpilepsyTeam Member

Im still on tegratol and now on a higher dose..still breastfeeding i got my doctors approval..

Hi Just Wondering Did Anyone Experience Speech Problems On Tegretol

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

On it 46 years no problems.