Prescription Prices
Does anyone know of any kind of treatment for epilepsy besides prescription drugs? I ask because trying to pay for multiple medicines every time you need them is impossible
There are prescription programs that can take a $400 script down to $40. Takes a minute to find and I actually had a pharmacist track down my first coupon. He looked at the bag with the cost listed… read more
Epilepsy, Keppra And Pregnancy
Hello
Just wondering how anyone on Keppra or with Juvenile Myoclonic Epilepsy has found being pregnant or what have you been advised? I have a very interested neurologist who last year told me I shouldn't have kids because it'll either damage me or the child will be severely disabled because of the medication! Have since done my own research and spoken to Doctors that have done studies and they had assuaged my fears for the the most part. Come my yearly review and nothing said by Neuro about… read more
Sleep Only Seizures.
Certain organisations need to give one off description upon one certain type of epilepsy
This will stop stigma and lack of awareness
Mine are FLE but the seizures I have only occur when asleep.
Not awake. Due to the lack of understanding people still think I’m a risk when awake because there is not enough information given concerning single types. I’m constantly subjected to discrimination by others who do not understand why I’m still allowed to drive a vehicle and even though my seizures… read more
I can understand how you feel and what you have decided
My career path relies on driving and design work on structural engineering. Mine came onset at 7 years old and here we are 42 years on and… read more
Why Does My Daughter Have All Her Fit Around Her Periods,
Why Does My Daughter Have All Her Fit Around Her Periods,
Anyone Go Through Brain Surgery For Seizure Freedom?
Severe epilepsy
I've had 2. Technically 3 surgeries. 1 was to map WHERE to do surgery. The 2nd surgery was a laser ablation. It worked for maybe 6 months to a year. My 3rd surgery was a brain resection I believe they… read more
What Dog Breeds Or Cat Breed Are Good For Epilepsy
To be truthful none as when I looked up to having one of them they cost thousands and thousands of pounds to have and you don’t get to pick the dog they choose it for you and that’s even if you have… read more
I Am A Mother Of An 12 Year Old Son With Epilepsy We Have A Pool And I Am Just So Scared Of Letting Him Swim Even With Supervision.
How do you cope with letting them swim I have so much fear letting my 12 year old swim?
It's dif per person, I think that you can get people's opinions on this, which is ok, but I think taking after you decide what to do and take preventative measures to prevent any accidents from… read more
Is Anyone Here Who Has Had A VNS Implantation? I'm Getting One This Week And Would Appreciate Any Tips Or Insights. Thank You In Advance!
I have Refractory epilepsy, idiopathic generalized epliepsy. I have tried 3 different medication and it just seems to make my seizures and quality of life worst. I am having 3-5 tonic clonic seizures a day yesterday was my first seizures free day in awhile.
Love you have help💕
Uk: Disabled Bus Pass
How long did it take for you to renew your bus pass?
I have 2 weeks left on my bus pass, they won’t accept a letter from my neurologist, so I’ve got to get a letter from my gp so I can get a new bus pass?
But with all my medical conditions they should accept my neurology letter as they said it’s not enough.
It really depends on where you live, and how you do it. Mine doesn’t take long - admittingly I can’t remember how long it took me to get mine done, but it is now mainly done online. Perhaps you… read more