Reedos and epilepsy | MyEpilepsyTeam

Connect with others who understand.

sign up Log in
Resources
About MyEpilepsyTeam
Powered By
Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Reedos" in Q&A. To see all results and access other features, sign up for free.

Prescription Prices

A MyEpilepsyTeam Member asked a question 💭

Does anyone know of any kind of treatment for epilepsy besides prescription drugs? I ask because trying to pay for multiple medicines every time you need them is impossible

A MyEpilepsyTeam Member

There are prescription programs that can take a $400 script down to $40. Takes a minute to find and I actually had a pharmacist track down my first coupon. He looked at the bag with the cost listed… read more

Epilepsy, Keppra And Pregnancy

A MyEpilepsyTeam Member asked a question 💭

Hello

Just wondering how anyone on Keppra or with Juvenile Myoclonic Epilepsy has found being pregnant or what have you been advised? I have a very interested neurologist who last year told me I shouldn't have kids because it'll either damage me or the child will be severely disabled because of the medication! Have since done my own research and spoken to Doctors that have done studies and they had assuaged my fears for the the most part. Come my yearly review and nothing said by Neuro about… read more

A MyEpilepsyTeam Member

Hi, I also suffer from JME. Been on Lamictal and Keppra for several years. The meds can cause your children to have developmental disabilities. I have a 5 year old and a 6 year old and both have… read more

Sleep Only Seizures.

A MyEpilepsyTeam Member asked a question 💭

Certain organisations need to give one off description upon one certain type of epilepsy
This will stop stigma and lack of awareness
Mine are FLE but the seizures I have only occur when asleep.
Not awake. Due to the lack of understanding people still think I’m a risk when awake because there is not enough information given concerning single types. I’m constantly subjected to discrimination by others who do not understand why I’m still allowed to drive a vehicle and even though my seizures… read more

A MyEpilepsyTeam Member

I can understand how you feel and what you have decided
My career path relies on driving and design work on structural engineering. Mine came onset at 7 years old and here we are 42 years on and… read more

I Am A Mother Of An 12 Year Old Son With Epilepsy We Have A Pool And I Am Just So Scared Of Letting Him Swim Even With Supervision.

A MyEpilepsyTeam Member asked a question 💭

How do you cope with letting them swim I have so much fear letting my 12 year old swim?

A MyEpilepsyTeam Member

Are his seizures controlled? Mine are controlled with meds but if I miss a dose I will have a seizure in the next few days. When I know that I have been taking my medication regularly as prescribed, I… read more

Anyone Go Through Brain Surgery For Seizure Freedom?

A MyEpilepsyTeam Member asked a question 💭

Severe epilepsy

A MyEpilepsyTeam Member

I've had 2. Technically 3 surgeries. 1 was to map WHERE to do surgery. The 2nd surgery was a laser ablation. It worked for maybe 6 months to a year. My 3rd surgery was a brain resection I believe they… read more

Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >
Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >

What Dog Breeds Or Cat Breed Are Good For Epilepsy

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

To be truthful none as when I looked up to having one of them they cost thousands and thousands of pounds to have and you don’t get to pick the dog they choose it for you and that’s even if you have… read more

Is Anyone Here Who Has Had A VNS Implantation? I'm Getting One This Week And Would Appreciate Any Tips Or Insights. Thank You In Advance!

A MyEpilepsyTeam Member asked a question 💭

I have Refractory epilepsy, idiopathic generalized epliepsy. I have tried 3 different medication and it just seems to make my seizures and quality of life worst. I am having 3-5 tonic clonic seizures a day yesterday was my first seizures free day in awhile.

A MyEpilepsyTeam Member

Love you have help💕

Sponsored Content
Learn more about VNS Therapy Read more >

Uk: Disabled Bus Pass

A MyEpilepsyTeam Member asked a question 💭

How long did it take for you to renew your bus pass?
I have 2 weeks left on my bus pass, they won’t accept a letter from my neurologist, so I’ve got to get a letter from my gp so I can get a new bus pass?
But with all my medical conditions they should accept my neurology letter as they said it’s not enough.

A MyEpilepsyTeam Member

It really depends on where you live, and how you do it. Mine doesn’t take long - admittingly I can’t remember how long it took me to get mine done, but it is now mainly done online. Perhaps you… read more

And Ideas With The Link Between Having A Pacemaker Then Having Vacant Seizures Straight Afterwards ?

A MyEpilepsyTeam Member asked a question 💭

Hi , just read an old message posted on Epilepsy Foundation many years ago which is similar to my condition. I had a dual pacemaker 14 yrs ago then soon after had vacant seizures. I then went on Lamotrigine which controlled them for 10 years. But 2022 I had another pacemaker as it was 10 yrs old. Then afterwards seizures started but with fainting episodes. My medication was increased but a year later I fainted again. I was put on adjusted hrs but in December 2023 fainted and lost my job. The… read more

A MyEpilepsyTeam Member

I also was told I was a liability “dangerous “. But soon after I had my first pacemaker I thought how can I now have seizures when I never had in the past. The implant gives out low voltage impulses… read more

What Do You Think Of Group Homes When You Have Epilepsy?Do You Think There Trustworthy/helpful?

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I agree with Peter
Independance is freedom
Being told how you must live
can feel like imprisonment and being housed with severely disabled people is very hard on your self worth.
It's a perfect… read more