Does anyone know of any kind of treatment for epilepsy besides prescription drugs? I ask because trying to pay for multiple medicines every time you need them is impossible
There are prescription programs that can take a $400 script down to $40. Takes a minute to find and I actually had a pharmacist track down my first coupon. He looked at the bag with the cost listed… read more
Hello
Just wondering how anyone on Keppra or with Juvenile Myoclonic Epilepsy has found being pregnant or what have you been advised? I have a very interested neurologist who last year told me I shouldn't have kids because it'll either damage me or the child will be severely disabled because of the medication! Have since done my own research and spoken to Doctors that have done studies and they had assuaged my fears for the the most part. Come my yearly review and nothing said by Neuro about… read more
How long did it take for you to renew your bus pass?
I have 2 weeks left on my bus pass, they won’t accept a letter from my neurologist, so I’ve got to get a letter from my gp so I can get a new bus pass?
But with all my medical conditions they should accept my neurology letter as they said it’s not enough.
It really depends on where you live, and how you do it. Mine doesn’t take long - admittingly I can’t remember how long it took me to get mine done, but it is now mainly done online. Perhaps you… read more
Hi , just read an old message posted on Epilepsy Foundation many years ago which is similar to my condition. I had a dual pacemaker 14 yrs ago then soon after had vacant seizures. I then went on Lamotrigine which controlled them for 10 years. But 2022 I had another pacemaker as it was 10 yrs old. Then afterwards seizures started but with fainting episodes. My medication was increased but a year later I fainted again. I was put on adjusted hrs but in December 2023 fainted and lost my job. The… read more
I also was told I was a liability “dangerous “. But soon after I had my first pacemaker I thought how can I now have seizures when I never had in the past. The implant gives out low voltage impulses… read more
I agree with Peter
Independance is freedom
Being told how you must live
can feel like imprisonment and being housed with severely disabled people is very hard on your self worth.
It's a perfect… read more
@A MyEpilepsyTeam Member And there were a significant number of states that did so last year.
I have had epilepsy for 24 years now. I have over the past year or so having problems with my speech. Like calling the fridge a toilet. As well I start a conversation and stop dead In the middle because I have no clue what I was talking about. Does anyone else have these issues? Do you know why?
This happens quite often to me. From my understanding its mild seizures. It is embarrassing.
I know that many people on this site is in a relationship. I am single. Why haven't I met the right person!
I understand what you are saying there most I did have one very serious relationship nearly married 24 yrs. ago. Since then, unable to find much of a social life to meet others in an entertaining… read more
I’m curious to find out your perspective on epilepsy. If someone who is newly diagnosed with E asked you if there was any hope of gaining seizure freedom, what would you say? Would you fill them with hope that they would be successful in achieving freedom, tell them that not everyone gets « cured » or something else altogether?
It is possible I guess all you have to do is ask your doctor and see if that would be possible.
Potential Nocturnal seizure
From what I have learned in the past the dog has to build a very strong bond with the owner of their dog. Nobody else can feed it, pet it, and talk to it. Their attention would not be strong enough… read more