I have Refractory epilepsy, idiopathic generalized epliepsy. I have tried 3 different medication and it just seems to make my seizures and quality of life worst. I am having 3-5 tonic clonic seizures a day yesterday was my first seizures free day in awhile.
I have had one put in and my seizures have cut down about 70%. It's not turned up all the way yet that's something that is slowly done
Do you have auras? I ask that because a VNS implantnt is scheduled to send out a electrical impulse every few minutes to intercept and stop or decrease strength of the electrical impulse from the brain that causes seizures They also give you a magnet. They give you that so you're able to have the ability to have the VNS send that impulse out when ever you feel a seizure starting. I don't have auras before seizures so the magnet was no use for me. So I believe that may be why the didn't help at all. If you're not sure if you have auras or not a way you may find out is, is if you know what lobe of the brain seizure is type in your search box question What do epileptic aura from the hear put which lobe feel like? After that it will tell you multiple ways the aura may feel like. Wish you best 👌 take care 🙂
In 2005 I had my VNS implant and the stimulator die in 2010. Through that time with this device, my seizures never reduced.
Keep in mind that , that just because it didn’t work well for me, doesn’t mean that it won’t work for you.
I have had a VNS for over 20 yrs. I love it ~!~ i have my freedom and are not afaid to go anywhere, I always have my magnet thou.