Occipital lobe epilepsy is one of the rarest forms of epilepsy. if you google search it there is little to no information that pops up. I have a blog dedicated to epilepsy and epilepsy awareness and one of my followers had asked me to post more bout occipital lobe epilepsy, I was a little discouraged by the lack of information there is out there. so I am asking for help, does anyone know about occipital lobe epilepsy? anybody have it? what can you tell me? don't leave anything thing out tell me… read more
I have occipital lobe epilepsy. There's little or no information about it around. My vision in 1 eye moves inwards, followed by whirring, flashing colours, circles, bolts of lightening, spinning… read more
Theyve been trying to get me to get epilepsy brain surgery for years the older I get the more I'm considering it as I'm seeing how it's affecting my life as an adult. I just want to hear other people who have already done it experiences so I know what I'm getting into. Did it completely cure you? Did your seizures get worse? Any mental changes in personality or mood? How painful was it? Etc.
@A MyEpilepsyTeam Member mine was so long ago I forgot about the puffy eyes. I had that as well. You have the same triggers as me
Hello all, just a general question here. After having a temporal lobectomy. When will the pain subside, as this is only being performed on one hemisphere.
Ouch these are the things I really like to know
my usual auras consist of tingling in the left side of my face.(my seizures typically occur in my right brain) but recently I had an aura that had visual symptoms. it reminded me of ripples, waves, or tunnel vision. there were also white lights/flashes.(I cannot find the right words to describe what I saw) but it was only in my left eye. I had a temporal lobectomy last year, what I am worried about is that maybe the seizure focus has moved to the occipital lobe or maybe there is scar tissue… read more
Oh in addition, its not migraine for me its epilepsy caused by my ex brain tumour
The farther it is, the blurry it gets. Or would it just be my age(30)?
No, I see alright in all directions.
Oh! that is very disappointing. I’m sorry that this has happened to you. If my Dr ever talks to me about this as a remedy I will certainly give this a second thought
Yes, I do. Sometimes it will be just randomly or due to stressful situations.
Please do answer as it would be very helpful if you can tell me your experience!! And happy epilepsy awareness month 💜💜💜💜
This is day 3 of the home telemetry video eeg. So far I been struggling to sleep. And I am kinda worried that if nothing appears.
I been seeing the coloured flashing lights a lot during this… read more