Mine was traumatic brain injury 7-2012. Celebrating 12 years recovery this July! Walking talking praising GOD! Temporal Lobe Epilepsy started after going back to corporate work place and scar tissue… read more
Occipital lobe epilepsy is one of the rarest forms of epilepsy. if you google search it there is little to no information that pops up. I have a blog dedicated to epilepsy and epilepsy awareness and one of my followers had asked me to post more bout occipital lobe epilepsy, I was a little discouraged by the lack of information there is out there. so I am asking for help, does anyone know about occipital lobe epilepsy? anybody have it? what can you tell me? don't leave anything thing out tell me… read more
I have occipital lobe epilepsy. There's little or no information about it around. My vision in 1 eye moves inwards, followed by whirring, flashing colours, circles, bolts of lightening, spinning… read more
Mine were called Absence, now Partial Awareness. Where I live there is no Liability Insurance, so they call 911. I would not trust anyone to administer anything. I now wear a Lifeline button. I had a fall because I had not eaten due to a tooth being pulled, and was in the ER.
Mark, thank you.
Is it possible to have a 2nd temporal lobectomy?
I was told that since seizures occur in the left temporal lobe, surgery is not an option, as it could make my memory problem worse.
I had 2 right temporal lobe lobectomies, removing 13%dead brain tissue of the 18% damaged. Unable to remove all 18% because it was too close, making too risky to area of other dead brain tissue. Or it… read more
Eye flickering since seizures started and recently learned that the flickering could be seizures as well. During the seconds that I experience this issue I’m no in control. What is the name for this type of seizure?
Your type of seizure isn't named only by where it begins... but the intensity and length of it as well
It sounds as though your seizures started in your occipital lobe
Did you see colour(lights) on… read more
In January I am scheduled to have a temporal lobectomy on my right hand side I was wondering who all has had this procedure done before and how it went
Thank you! Also if it makes you feel any better my neuro said the exact same thing. I had an eeg in 2016 and 1 seizure was on the left side so they shut operation down. Only in September did they… read more
To those of you who have Occipital lobe Epilepsy, what do you experience? Do you get a lot of headaches/ migraines? Or see flashing lights?
It looks like my diagnosis has slightly changed... So now I more then likely have TLE & OLE.
I have occipital lobe herniation due to a forceps delivery. That has contributed to my lousy balance and impaired coordination. As well as intolerance of flashing lights and headaches if I don’t… read more
Diagnosed epilepsy 2017 after two seizures two years apart. Lamotrgine has kept seizures away. Have always been a bit light sensitive but Increasingly in recent months… If I’ve seen a very bright flash of light or spend more than an hour on PC, within 24hr i get a fuzzy headache in one area of head, right centre.. lasts for four or five days and then clears… it’s a fairly recent development for it to be happening so frequently and am a bit concerned. Any advice please?
I like natural light more, but light that is not natural such as lights at home and stores etc I'm ok with, but prefer natural light my opinion
Does anyone have occipital lobe epilepsy?? I already had temporal lobe and was recently diagnosed with this, I’m just really confused and am experiencing a lot of weird things and was hoping there was someone on here I could talk to that could help me and relate/:
Thanks Margery, I have to remind myself when dealing with doctors that we are experts on epilepsy because we know it intimately by having it, and that doctors may have studied it in depth but can… read more