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Top 10 Search Results for "Occipital lobectomy"

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I'm Having Visual Auras, Are They Coming From My Occipital Lobe?

I'm Having Visual Auras, Are They Coming From My Occipital Lobe?

my usual auras consist of tingling in the left side of my face.(my seizures typically occur in my right brain) but recently I had an aura that had visual symptoms. it reminded me of ripples, waves, or tunnel vision. there were also white lights/flashes.(I cannot find the right words to describe what I saw) but it was only in my left eye. I had a temporal lobectomy last year, what I am worried about is that maybe the seizure focus has moved to the… read more

A MyEpilepsyTeam Member said:

Oh in addition, its not migraine for me its epilepsy caused by my ex brain tumour

posted almost 3 years ago

Does Anyone Know Or Have Experience With A Temporal Lobectomy?

Does Anyone Know Or Have Experience With A Temporal Lobectomy?

A MyEpilepsyTeam Member said:

Hi Chris . I'm much better than I was before. It may not of made me seizure free, but it did help reduce the frequency of my seizures. I went from sever… read more

edited, originally posted over 3 years ago

Recovery Time After Temporal Lobectomy Surgery?

Recovery Time After Temporal Lobectomy Surgery?

I'm planning on having the temporal lobectomy surgery next month. What is the expected timeline of feeling better? My doctor said 5 weeks but I am interested to hear what that means. Does that mean in two weeks you felt better enough to go out or not need assistance or did it take longer? Thanks!

A MyEpilepsyTeam Member said:

I was born with all the seizures an had my whole right temporal lobe removed on my 6th birthday then when I was 17 I got the VNS put in my chest for my… read more

posted about 1 year ago

Does Anyone Know About Occipital Lobe Epilepsy?

Does Anyone Know About Occipital Lobe Epilepsy?

Occipital lobe epilepsy is one of the rarest forms of epilepsy. if you google search it there is little to no information that pops up. I have a blog dedicated to epilepsy and epilepsy awareness and one of my followers had asked me to post more bout occipital lobe epilepsy, I was a little discouraged by the lack of information there is out there. so I am asking for help, does anyone know about occipital lobe epilepsy? anybody have it? what can you tell me? don't… read more

A MyEpilepsyTeam Member said:

I have occipital lobe epilepsy. There's little or no information about it around. My vision in 1 eye moves inwards, followed by whirring, flashing… read more

posted almost 3 years ago

Right Anterior Lobectomy

Right Anterior Lobectomy

I had a right anterior temporal lobectomy in 1988 and did notice weakness on my left side and have walked with a limp ever since but also notice that temperatures affect me also like if I'm standing outside for a short time in the cold that when I go to walk I nave to really think about getting my left leg to move. Heat in a sauna has caused a seizure .

A MyEpilepsyTeam Member said:

Only heat that affects me is the hot sauna's I take so I've had to limit the time I stay in one though being Finn and I love my sauna's I need to stay… read more

posted almost 3 years ago

This Question Is In Relation To Epileptic Surgery

This Question Is In Relation To Epileptic Surgery

I just wonder if after a left temporal lobectomy did people still suffer from seizures long after the surgery?

A MyEpilepsyTeam Member said:

I had a left temporal lobectomy about 25 years ago. Pre-surgery, I had multiple petit mal seizures a day; post-surgery, I was seizure free for 2 years.… read more

posted over 3 years ago

Left Temporal Lobe Surgery

Left Temporal Lobe Surgery

My son is set to have left temporal lobectomy on September 28 2018. I am wanting to talk to people who have had this done and your experiences. We are very nervous.

A MyEpilepsyTeam Member said:

That’s the same date that I had my left Temporal Lobe brain surgery ( Selpt. 28th. ).. the only difference was the year, which was in 1998.

My Dr.… read more

posted over 2 years ago

Has Anyone Ever Had Laser Ablation Epilepsy Surgery?

Has Anyone Ever Had Laser Ablation Epilepsy Surgery?

my epileptologist brought this up yesterday as possible treatment for my seizures. I had a temporal lobectomy, but that didn't work (at least not 100%) and gave me a different type of seizures. the place he wants to zap with a laser is a sensitive area that they KNEW was causing seizure activity, but couldn't remove during the temporal lobectomy because it would be dangerous to do so.

has anyone else had this surgery? how was it? was it painful? did it work?… read more

A MyEpilepsyTeam Member said:

Just an update: I had laser ablation over 3 years ago and am still completely seizure free. I've been weened off of all medications, got my driver's… read more

posted 12 months ago