Occipital lobe epilepsy is one of the rarest forms of epilepsy. if you google search it there is little to no information that pops up. I have a blog dedicated to epilepsy and epilepsy awareness and one of my followers had asked me to post more bout occipital lobe epilepsy, I was a little discouraged by the lack of information there is out there. so I am asking for help, does anyone know about occipital lobe epilepsy? anybody have it? what can you tell me? don't… read more
Hi there, my son has occipital lobe epilepsy, so it is visual. He was diagnosed about 8 months ago by a paediatric neuro. His MRI was clear and he had an abnormal EEG. He is on 5ml of epilum twice a day and 1mg of ativan if he has a seizure. His seizures cause a twitch in his eyes and parts of his face. I do have the odd video if you would like to see what their seizures are like, the seizures are not dangerous but at the same time not good for the brain. He had his first break through seizures last week and the twitching has almost stopped.
@A MyEpilepsyTeam Member I'm very interested in learning more about the symptoms you son had when first diagnosed. We just got an abnormal EEG in the Occipital Lobe. I was actually just a random finding on a sleep study that we did for sleep apnea. We just started seeing symptoms and curious if they are similar to your sons.
Occipital definitely is visual. When my Mother-In-Law died of cancer, Her cancer was right behind her eye, thus it was named Occipital cancer.
I was told that my seizure activity was coming from between my occipital lobe and temporal lobe. During my focal seizures I see a lot of lights which my doctor said is coming from my occipital lobe.
I have occipital lobe epilepsy. There's little or no information about it around. My vision in 1 eye moves inwards, followed by whirring, flashing colours, circles, bolts of lightening, spinning vision. Its awful. Lasts about 5 minutes, but once when my tablets packed up I had it constantly for 18 months. I don't know how I made it through.
I've been on so many combinations of tablets, none work and as now, the sickness is awful and I still get a few a day.
I don't go in shops, I won't socialise, Im giving up work because I can't take it.