Responsive neurostimulation (RNS) and epilepsy | MyEpilepsyTeam

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Top 10 Search Results for "Responsive neurostimulation (RNS)"

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VNS & RNS
A MyEpilepsyTeam Member asked a question 💭

Does anybody have a VNS and an RNS that work together? Im trying to get the RNS but at a Previous meeting my dr said they were unsure because i already have a VNS. The last time we spoke to her she said shes spoken to other dr’s and they do have patients who have both and that they work together somehow? My VNS doesnt help me thats why she told us that, i told her we can turn it off and she gave us that info. I’d like to know if there’s anyone on the app who has both and how they work for… read more

A MyEpilepsyTeam Member

It's time to talk to your Dr about trying a new seizure med.

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Has Anyone Had RNS (Responsive Neurostimulation)?
A MyEpilepsyTeam Member asked a question 💭

My partner is scheduled to have RNS surgery this month. I would appreciate people sharing their experience tremendously. Recovery time? Any difference in memory? Did seizures decrease?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I have had a few surgical EEG’s, where the doctors drilled holes in my head. The problem was I wouldn’t have any of my larger seizures for them to see so they were almost a… read more

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Does Anyone Have Experience With VNS, RNS,DNS?
A MyEpilepsyTeam Member asked a question 💭

If you have a VNS, RNS, or DNS, what is your experience with it? Any pros/cons?

A MyEpilepsyTeam Member

I have my V.N.S. get my replace every ten years. I have had 3 so far in the past 30 years. I love it. It controls my seizures all the time.

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For Those Of You Who Have Been Going To A Seizure Specialist What Has The Experience Been Like?
A MyEpilepsyTeam Member asked a question 💭

So, I've been seeing a regular neurologist for about 3 years now (partial seizures). I had a seizure last month and after that one my neurologist finally referred me to a seizure specialist, my appointment scheduled in October. It's going to be a full day event, I'm going to have a EEG done in the morning and I'll meet back with the doctor later on.

A MyEpilepsyTeam Member

Patricia, yes!

Has There Been Any Responses From Someone Who Suffers From Musicgenic Epilepsy I Know It's A Very Rare Form 1 In 10 Million.
A MyEpilepsyTeam Member asked a question 💭

I have had this condition since I was 16 now 31. I live a very secluded lifestyle, I can't work because of fear of having seizures. I haven't been on any medication since none helped after I had my first two seizures. Any help or suggestion would be very helpful. There is a very long story about my condition that makes it difficult to put on this website. I wish there were a way of contacting someone at My Team Epilepsy.

Breakthrough Seizures: Causes, Symptoms, and Treatment Read Article...
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
My seizures have been drug resistant for over 30 years so I have a Neurostimulator (RNS). I still have seizures but they’ve maybe improved.

Does Anyone Have The Neurostimulator Implanted?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Thank you @A MyEpilepsyTeam Member . I’m praying for less seizures . So far, so good. Still have seizures but so far it’s been less amounts.

My wife and I are both noticing a difference.

Has Dr Told You That They Can’t Control Your Seizures With Meds?
A MyEpilepsyTeam Member asked a question 💭

My son was on Vimpat for 6 years. I seen no seizures then he started having falls. He got a pacemaker and dr removed the Vimpat and put him on Keppra. Then added zonisamide then added Epidiolex and still has falls from seizures. He don’t shake but still has them.
Hoping for a cure for him.

A MyEpilepsyTeam Member

I have what Dyscognitive Refractory Epilepsy when diagnosed by Dr. Veedu. I had a "craniotomy" back in 2018 and have had no seizures since then ! Great feeling too ! 💜

The RNS
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I really am switching to the RNS. Had VNS since 2001.

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Good Evening Does Anyone Know Anything About The VPN And The RNS System For Your Seizures?
A MyEpilepsyTeam Member asked a question 💭

This thing makes me feel like coughing and throwing up.

A MyEpilepsyTeam Member

That is what I have a stimulator. I was nervous about it but it has helped some.

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What Are The Negative Effects Of The RNS?
A MyEpilepsyTeam Member asked a question 💭
Temporal Lobe Epilepsy: Symptoms, Causes, and Treatment Read Article...
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member
I had several EEG’s before I got the Neurostimulator (RNS) including a surgical one. The bad thing was I didn’t have any big seizures during them so they were a waste. That’s… read more

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