Does anybody have a VNS and an RNS that work together? Im trying to get the RNS but at a Previous meeting my dr said they were unsure because i already have a VNS. The last time we spoke to her she said shes spoken to other dr’s and they do have patients who have both and that they work together somehow? My VNS doesnt help me thats why she told us that, i told her we can turn it off and she gave us that info. I’d like to know if there’s anyone on the app who has both and how they work for… read more

My partner is scheduled to have RNS surgery this month. I would appreciate people sharing their experience tremendously. Recovery time? Any difference in memory? Did seizures decrease?

So, I've been seeing a regular neurologist for about 3 years now (partial seizures). I had a seizure last month and after that one my neurologist finally referred me to a seizure specialist, my appointment scheduled in October. It's going to be a full day event, I'm going to have a EEG done in the morning and I'll meet back with the doctor later on.

I have had this condition since I was 16 now 31. I live a very secluded lifestyle, I can't work because of fear of having seizures. I haven't been on any medication since none helped after I had my first two seizures. Any help or suggestion would be very helpful. There is a very long story about my condition that makes it difficult to put on this website. I wish there were a way of contacting someone at My Team Epilepsy.

This thing makes me feel like coughing and throwing up.

My son was on Vimpat for 6 years. I seen no seizures then he started having falls. He got a pacemaker and dr removed the Vimpat and put him on Keppra. Then added zonisamide then added Epidiolex and still has falls from seizures. He don’t shake but still has them.
Hoping for a cure for him.