Does anybody have a VNS and an RNS that work together? Im trying to get the RNS but at a Previous meeting my dr said they were unsure because i already have a VNS. The last time we spoke to her she said shes spoken to other dr’s and they do have patients who have both and that they work together somehow? My VNS doesnt help me thats why she told us that, i told her we can turn it off and she gave us that info. I’d like to know if there’s anyone on the app who has both and how they work for… read more
@A MyEpilepsyTeam Member my medicaid wont remove it, they can just turn it off, but i see no point in doing so because it could be helping slightly for all i know.
Thank you @A MyEpilepsyTeam Member . I’m praying for less seizures . So far, so good. Still have seizures but so far it’s been less amounts.
My wife and I are both noticing a difference.
I have the RNS cut my seizures in half and the ones I have are not as bad. Sean 100% correct on everything else about it.
What's the difference between the 2?
I thought about it I might do it
Resective surgery for epilepsy is when they remove a small portion of the brain. RNS, a neurostimulator is placed under the scalp and within the skull.
I had the R.N.S implanted in my skull in September. My seizures have gone way down!! I keep a log and now I have on average 2 blackout seizures and a few auras a month. I use to have a seizure every… read more
I'm like sean I had one 5 years ago my pic. Looks just like his its sounds horrible at first I was like look stop telling me about holes in my head lol. It's not as bad as it looks or sounds it's more… read more
I have had epilepsy for 4 years now and just now learning new and more stuff about it
I've had it for 22 years and I'm still trying to figure out what kind of seizures is what or what those things are so don't feel bad
Who has experience with clonazepam and or Lorazepam? I'm hoping to wein off of Clonazepam soon. I had a seizure every time we tried weining me off Lorazepam. So we switched to Clonazepam in the hopes that weining slowly off it won't cause seizures.
I hope things get better! 🙏🙏🌷
My son has focal seizures and on three meds .. he still gets seizures auras make it very hard for him … his doctors suggest a brain surgery as he has a brain injury during birth … any advice or recent experience anyone had ….