@A MyEpilepsyTeam Member, you can send a message to team member @A MyEpilepsyTeam Member. He has had RNS surgery and appears to be doing well. He would be the one to answer all your questions.

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A MyEpile...

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@A MyEpilepsyTeam Member
I have had a few surgical EEG’s, where the doctors drilled holes in my head. The problem was I wouldn’t have any of my larger seizures for them to see so they were almost a waste. That’s what lead me into getting the Neurostimulator (RNS). The RNS not only helps reduce seizures but it also records my brain activity while I’m having a seizure. Whenever I have a seizure my mom will touch my head with a magnet to mark the spot where I have a seizure. Before I go to bed every night I turn on the RNS monitor and place a wand on my head. It will take a minute or two to download any information. When it’s complete I hit send and all of the information it downloaded is sent to my doctors. When I go see my neurologist and other doctors they get out their computer and can see everywhere I had a seizure and everywhere the magnet was used. Most of the lines on the screen are level but when they go to a spot where I had a seizure the lines get bouncy ——wwwwww——. They write down any info and keep raising the amps on the RNS hoping to reduce my seizures more. I never feel any vibrations with the RNS. So the more and more they’ve risen the amps I believe has slowed my seizures down. It hasn’t made a difference on my memory. I’ve been forgetful ever since I started having seizures as a kid.

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A MyEpile...