Thank you both! My son has a dr apart soon. Gonna have a convo with the neuro about it!!

I still have my VNS stimulator. I helped reduce the time limit of my seizures from minutes to seconds. Last year I had surgery to put in a battery. Mine has worked fine. My seizures are so fast, my husband barely has time to get his phone on camera to record some of it for my neurologist. Any of the seizure he gets on camera helps the doctor a lot.

I am still looking at my sons VNS device to see if it actually works only had it inserted in Dec 2023

@A MyEpilepsyTeam Member
I used to have a Vagus Nerve Stimulator but had no luck with it. It vibrated like crazy and made me cough and messed up my speech. Now I have a Neurostimulator (RNS). It works better controlling my seizures plus it records all of my seizures. I just had a seizure about 1 hour ago. Tonight I’ll get on my RNS monitor and it will download all the information from the seizure and send it to my neurologist. I do this everyday so I won’t need anymore EEG’s. If you’d like to know everything about the RNS let me know.

Mentioned Users

A MyEpile...