I go to my doc , she is good with me and my visits, I see her 2 times a year, I was seeing her more often before, but my condition, became more stable, like I said, my seizures are from time to time, and we discussed the time of twice a year and is okay doing. My opinion.

@A MyEpilepsyTeam Member,. The VNS stand for Vagus Nerve Stimulation. A pacemaker like device ( the Stimulator) gets implanted behind the skin by the left chest . Wires, called Leads, are connected to the power box ( Stimulator) . The wire are brought up and twine around the Vagus Nerve of the brain. It Sends an electrical pulse through the wire to the nerve to help reduce the Seizures.

The DBS is ( Deep Brain Stimulator ), which was originally used for people with Parkinson’s disease . It was approved in the United States through the FDA ( Food and Drug Administration ) , in 2018. It sort of like the VNS. The Pacemaker like device with leads connect to it. The wire are bung to the top of the brain 🧠 and inserted deep into the core of the brain. Like the VNS it sends en electric pulse, to the brain to help reduce seizures.

The RNS ( Responsive NeuroStimulation ) is implanted directly on top of the brain. It keep track of your brainwaves, detecting for abnormal brain waves, which causes the seizures. It’s Sort of like a EEG. It goes everywhere you go. This too will send electric pulse to your brain, when it detects the abnormal brainwave.

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A MyEpile...

I’ve seen two different epileptologists and will be seeing a third one soon.

Having had this for more than 27 years, I would say seeing an epileptologist is a good first step. However, more important than that is seeing how much experience they really have.

My first epileptologist missed my diagnosis. My second epileptologist, knew what I had because he just had that much more experience with number of patients. The only reason I’m seeing a new one is because I’m testing for a third surgery and the neurosurgeon requires me to see one of their preferred epileptologists.

However, don’t be disappointed if you don’t get an immediate answer. Epilepsy isn’t a sprint, it’s a marathon.

Hopefully you find the answer you are looking for!

Hey everyone, so just an update: I saw the specialist I was referred to last month. I have an appointment to do an inpatient EEG at the beginning of next month. The doc said it though it usually doesn't take more than about 3 days, he wants me to prepare for a 7 day stay just in case. I'm supposed to be in the monitoring room 24/7 straight, and am going to have a support person there.... also 24/7 straight. Doc wants me off my seizure meds while I'm there while I'm being monitored. This is most definitely going to be an interesting experience ...😶

Has anyone ever done an inpatient EEG before?