To The 18 People Who List Corpus Callosotomy As A Treatment: Can You Please Share Your Experience With This Surgery?

I am new to this network and I see where 18 of 20276 people who include corpus callosotomy (CC) in their treatment. I would love to learn about anyone's experience with CC surgery. It has been recommended for my 14 yo son who has drug-resistant/refractory myoclonic astatic epilepsy (MAE or Doose Syndrome) since age 4. His seizures, which are generalized, have worsened significantly with the onset of puberty. The thought of major brain surgery and the potential side effects scare the heck out… read more

What Has Been Your Experience With Surgery?

Every neurologist I have seen tells me I need surgery to control my seizures. I have temporal lobe epilepsy that causes complex partial seizures. I've been through four different medications and still do not have control over the seizures.

I don't know if my condition is progressing or if the medication is causing me problems, but either way, I have noticed that I have forgotten a lot of things and my thought process is slower than it used to be. It's driving me nuts. I used to be the top of my… read more

Is There More In Depth Cognitive Problems For Someone Who Has Had A Corpus Callosum?

My son has Dravet Syndrome a form of Epilepsy
He has significant cognitive delays. Almost 9 years ago he had a corpus callosum. He was struggling with learning. He went to a regular school. He was learning to write his name fairly well, learning both letters and numbers. About 6 years ago we had to move again in regular school. He no longer can write his name, doesn't know his alphabet or numbers any longer
This school year he is in a specialized school. ( He is struggling, they say he is… read more

Reaction!

If/ I may ask, should you not be comfortable answering by all means. How has everyone felt after their diagnoses? Was it hard to accept?

I Have Lower Left Eye Muscle Spasms. Is This A Common Thing With Epilepsy, I Also Do Have A Brain Birth Defect

I also suffer from dysgenesis corpus callosum. Can affect my epilepsy triggers...or is it a warning sign, or it it another form of seizure?

Hallucinations

I have always "seen things",lately the things I've seen are as if I'm living in a horror film. I'll see blood splatter everywhere in my shower or on my doors. I commonly see "bugs". The other day it even looked as if one of my feet was "that of a corpses" and as though it was decaying. I regularly see people that others do not
I am curious what most everyone else has hallucinations of. I've got a few friends who see "bugs" as well, or just "flashes of light", but what is the strangest… read more

Elepsia XR

It Works Well For Me Who Else Takes It

Was In Er Woke From Seizures Being Struck In Chest By Nurse Told By Dr

Being a past practioner I'm torn as what I should do so I'm asking advice?

I’m 30 Yrs Old Man Don’t Have A Car And Have Me Never Been Able To Get To Know A Lady To Turn Into A Potential Partner

I also would love to make more friends as well as people are quick to judge at times.

Question For People In Wisconsin Going To Medical College Of Wis & Froedtert Hospital

So i have been working on all my test to see if i can have the brain surgery
this is not my normal Dr i am seeing and i live over in Kenosha Wis so i have to get a ride out to the Millwaukee area
i am afraid that something is going to go wrong
I have not heard anything bad about them but it is a college
anyone have info on the hospital