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I was wondering the side effects from surgery, effectiveness and recovery time. Anything you can share is great. Do they help with dropping seizures?
Hi everyone, I wanted your thoughts about what your would do if you were in my situation. I moved about a year ago to Central California and have to find a new neurologist. My existing one from Southern California is good but he is too far away now. The dilemma I'm facing is whether or not I should bother going to an Epilepsy Level 4 Center in the Bay Area. I've already had surgery twice, and probably wouldn't go for third one even if there was an opportunity in hopes of controlling my seizures… read more
Kevin I black out when I have mine and can’t talk don’t know if it’s similar but always been on meds no surgery My doc isn’t the best but life goes on. Just got my meds adjusted hope it works
I got the majority of the "important" questions answered that i asked my docs. I just forgot to ask, how long it takes for the chunk of skull to heal that they cut? Do they use screws to hold it together? Can you feel the fact your skull has been cut or that there are screws(if there is screws)? If anyone has has a resection, do you know a rough estimate what the answers would be? I know i can always ask the day of surgery for more exact answers, i just kinda want to go into knowing ahead of… read more
Research on a reputable site like Mayo, Cleveland, John's Hopkins clinics. Put your questions on Google and choose what those sites offer. This will help you ask better questions as well
Also Gigi… read more
I am new to this network and I see where 18 of 20276 people who include corpus callosotomy (CC) in their treatment. I would love to learn about anyone's experience with CC surgery. It has been recommended for my 14 yo son who has drug-resistant/refractory myoclonic astatic epilepsy (MAE or Doose Syndrome) since age 4. His seizures, which are generalized, have worsened significantly with the onset of puberty. The thought of major brain surgery and the potential side effects scare the heck out… read more
Age is not a factor. My son just had a corpus callosotomy and he's only 2 years old.
Every neurologist I have seen tells me I need surgery to control my seizures. I have temporal lobe epilepsy that causes complex partial seizures. I've been through four different medications and still do not have control over the seizures.
I don't know if my condition is progressing or if the medication is causing me problems, but either way, I have noticed that I have forgotten a lot of things and my thought process is slower than it used to be. It's driving me nuts. I used to be the top of my… read more
I know the feeling....Except my neurologists over the years were not saying the surgery aspect. But I have been thru 9 medications now. I'm taking 2 medications now. But have dealt with 9 over the… read more
Hello everyone, I have a question to you all. I am having these strange symptoms that I cannot explain, although I researched a lot and talked to neurologists no one can provide me with any answers regarding this issue so maybe you could help me with this. The thing is, I got some weird episodes. I know for a fact that I got tonic and myclonic seizures but there is something that is bothering me even more. Nowadays I got this weird thing, basically at times (especially near the evening or after… read more
Get specialized care like Mayo!
It is a fact that I will not hear back ever again if I contact the builders of this site or whoever they have running them. However, either by reading my suggestions or someone else who had the exact same suggestions or questions relayed to those who run this site have made modifications that are much more useful.
However, I am curious if they will provide a link to My Team (for all the sites) help site either to the opening screen or for the ambassadors to share with the new members.
Right I had same question.
Looking for advice on safeguards to put in place, any devices used, and so forth. Living in the dorm with a roommate…
He'll be fine hiding epilepsy is passè now. Of course he'll want to.have fun, party at this special time of his. If he drinks too much has a seizure will be enough to convince him.not to again. With… read more
I've seen a psychiatry before to work on anxiety and depression. After my surgery last year November 2017, my memory and language got worst. My filipino language got affected too. I'm really bad with names. A lot of student in Childcare campus greets me and I can only say hello cause I forgot their names. Forgettin guy's name even though I see them every month or family friend is worst. Neurologist told me to see Neuropsychologist.
@A MyEpilepsyTeam Member i too have a rare form of seizures. i have grain allergies. if i do have, grains it will attack the weakest link. that weakest link was by brain.
My son has Dravet Syndrome a form of Epilepsy
He has significant cognitive delays. Almost 9 years ago he had a corpus callosum. He was struggling with learning. He went to a regular school. He was learning to write his name fairly well, learning both letters and numbers. About 6 years ago we had to move again in regular school. He no longer can write his name, doesn't know his alphabet or numbers any longer
This school year he is in a specialized school. ( He is struggling, they say he is… read more
I never had Corpus Callosum , but I have hade similar experience
I was alway in a lower learning grade level than the grade that I was in. From elementary all the way through high school, I was in… read more