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Top 10 Search Results for "Corpus callosotomy"

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To The 18 People Who List Corpus Callosotomy As A Treatment: Can You Please Share Your Experience With This Surgery?

To The 18 People Who List Corpus Callosotomy As A Treatment: Can You Please Share Your Experience With This Surgery?

I am new to this network and I see where 18 of 20276 people who include corpus callosotomy (CC) in their treatment. I would love to learn about anyone's experience with CC surgery. It has been recommended for my 14 yo son who has drug-resistant/refractory myoclonic astatic epilepsy (MAE or Doose Syndrome) since age 4. His seizures, which are generalized, have worsened significantly with the onset of… read more

A MyEpilepsyTeam Member said:

Age is not a factor. My son just had a corpus callosotomy and he's only 2 years old.

posted 10 months ago

Is There More In Depth Cognitive Problems For Someone Who Has Had A Corpus Callosum?

Is There More In Depth Cognitive Problems For Someone Who Has Had A Corpus Callosum?

My son has Dravet Syndrome a form of Epilepsy.
He has significant cognitive delays. Almost 9 years ago he had a corpus callosum. He was struggling with learning. He went to a regular school. He was learning to write his name fairly well, learning both letters and numbers. About 6 years ago we had to move again in regular school. He no longer can write his name, doesn't know his alphabet or numbers any longer.
This school year he… read more

A MyEpilepsyTeam Member said:

I never had Corpus Callosum , but I have hade similar experience.
I was alway in a lower learning grade level than the grade that I was in. From… read more

edited, originally posted 9 months ago

I Have Lower Left Eye Muscle Spasms. Is This A Common Thing With Epilepsy, I Also Do Have A Brain Birth Defect

I Have Lower Left Eye Muscle Spasms. Is This A Common Thing With Epilepsy, I Also Do Have A Brain Birth Defect

I also suffer from dysgenesis corpus callosum. Can affect my epilepsy triggers...or is it a warning sign, or it it another form of seizure?

A MyEpilepsyTeam Member said:

I have that in my eyes. I've never noticed it as a warning. I think mine are caused by stress.

posted over 3 years ago

What Has Been Your Experience With Surgery?

What Has Been Your Experience With Surgery?

Every neurologist I have seen tells me I need surgery to control my seizures. I have temporal lobe epilepsy that causes complex partial seizures. I've been through four different medications and still do not have control over the seizures.

I don't know if my condition is progressing or if the medication is causing me problems, but either way, I have noticed that I have forgotten a lot of things and my thought process is slower than it used to be. It's driving me nuts. I… read more

A MyEpilepsyTeam Member said:

I know the feeling....Except my neurologists over the years were not saying the surgery aspect. But I have been thru 9 medications now. I'm taking 2… read more

posted about 4 years ago

How Can I Determine Types Of Seizures I Have

How Can I Determine Types Of Seizures I Have

I was born with severe prenatal brain damage at the term of the 2nd trimester preventing development of corpus callosum. To my understanding, I suffer extreme nocturnal myoclonus, daytime myoclonus, possinbly essential myoclonus and absence seizures. I also suffer essential and intention tremor. I experience extreme pain more than anything else. I have very little knowledge of when and how I seize but my daughter tells me I have several occasions during waking hours… read more

A MyEpilepsyTeam Member said:

You have better chance of determining your seizures by doing an EEG.

posted about 3 years ago

This Is For The Tampa Bay, FL Area. Who Is Ready This Saturday For The Neurology Awareness Fair At Downtown TGH Campus 6 Rehab Bldg?

This Is For The Tampa Bay, FL Area. Who Is Ready This Saturday For The Neurology Awareness Fair At Downtown TGH Campus 6 Rehab Bldg?

From 10 to 12 pm, Free Admission, Presentations in Epilepsy, Neuropsychology, Brain Repair and Neurosurgery, etc.

A MyEpilepsyTeam Member said:

Well,
I just got the Confirmation back and it's October 20, 2018 between 11 to 2. The same place, Tampa General Hospital Rehabilitation Center Rooms 200… read more

posted almost 3 years ago

Can A College University Refuse Medical Services To Me When I Have Epilepsy?

Can A College University Refuse Medical Services To Me When I Have Epilepsy?

They’ve refused to assist me with mt rescue pill and contacting my family. They also lied and said they didnt have my resxcue pill last time I had a seizure on campus. They really did have it just decided to let my seizure worsen

A MyEpilepsyTeam Member said:

i'd contact a lawyer personally. They cannot deny you medical treatment its against the law, discriminatory as well they cannot do that.

posted about 1 year ago

Difference Between Psychiatry And Neuropsychiatry

Difference Between Psychiatry And Neuropsychiatry

I've seen a psychiatry before to work on anxiety and depression. After my surgery last year November 2017, my memory and language got worst. My filipino language got affected too. I'm really bad with names. A lot of student in Childcare campus greets me and I can only say hello cause I forgot their names. Forgettin guy's name even though I see them every month or family friend is worst. Neurologist told me to see Neuropsychologist.

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member i too have a rare form of seizures. i have grain allergies. if i do have, grains it will attack the weakest link. that weakest… read more

posted over 2 years ago

Going To A Great Concert With Light And Other Triggers For Seizures

Going To A Great Concert With Light And Other Triggers For Seizures

My friend takes me with him to a big concert of The Corss with lights and other triggers, like many people, to have a seizure.
I am very scarry!
We have sitting places.
Are there some things i can do to make it less scarier.
Some kind of eyeglasses of so?
Thans very much!

A MyEpilepsyTeam Member said:

@LissenAnne, Yes there is. Go to your eye Dr and he will recommend something
That is stronger than the regular sunglasses. And they should help.
Best… read more

posted over 4 years ago