I am new to this network and I see where 18 of 20276 people who include corpus callosotomy (CC) in their treatment. I would love to learn about anyone's experience with CC surgery. It has been recommended for my 14 yo son who has drug-resistant/refractory myoclonic astatic epilepsy (MAE or Doose Syndrome) since age 4. His seizures, which are generalized, have worsened significantly with the onset of… read more
My son has Dravet Syndrome a form of Epilepsy.
He has significant cognitive delays. Almost 9 years ago he had a corpus callosum. He was struggling with learning. He went to a regular school. He was learning to write his name fairly well, learning both letters and numbers. About 6 years ago we had to move again in regular school. He no longer can write his name, doesn't know his alphabet or numbers any longer.
This school year he… read more
I also suffer from dysgenesis corpus callosum. Can affect my epilepsy triggers...or is it a warning sign, or it it another form of seizure?
Every neurologist I have seen tells me I need surgery to control my seizures. I have temporal lobe epilepsy that causes complex partial seizures. I've been through four different medications and still do not have control over the seizures.
I don't know if my condition is progressing or if the medication is causing me problems, but either way, I have noticed that I have forgotten a lot of things and my thought process is slower than it used to be. It's driving me nuts. I… read more
I was born with severe prenatal brain damage at the term of the 2nd trimester preventing development of corpus callosum. To my understanding, I suffer extreme nocturnal myoclonus, daytime myoclonus, possinbly essential myoclonus and absence seizures. I also suffer essential and intention tremor. I experience extreme pain more than anything else. I have very little knowledge of when and how I seize but my daughter tells me I have several occasions during waking hours… read more
From 10 to 12 pm, Free Admission, Presentations in Epilepsy, Neuropsychology, Brain Repair and Neurosurgery, etc.
They’ve refused to assist me with mt rescue pill and contacting my family. They also lied and said they didnt have my resxcue pill last time I had a seizure on campus. They really did have it just decided to let my seizure worsen
I've seen a psychiatry before to work on anxiety and depression. After my surgery last year November 2017, my memory and language got worst. My filipino language got affected too. I'm really bad with names. A lot of student in Childcare campus greets me and I can only say hello cause I forgot their names. Forgettin guy's name even though I see them every month or family friend is worst. Neurologist told me to see Neuropsychologist.
My friend takes me with him to a big concert of The Corss with lights and other triggers, like many people, to have a seizure.
I am very scarry!
We have sitting places.
Are there some things i can do to make it less scarier.
Some kind of eyeglasses of so?
Thans very much!