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Top 10 Search Results for "Corpus callosotomy"

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To The 18 People Who List Corpus Callosotomy As A Treatment: Can You Please Share Your Experience With This Surgery?

To The 18 People Who List Corpus Callosotomy As A Treatment: Can You Please Share Your Experience With This Surgery?

I am new to this network and I see where 18 of 20276 people who include corpus callosotomy (CC) in their treatment. I would love to learn about anyone's experience with CC surgery. It has been recommended for my 14 yo son who has drug-resistant/refractory myoclonic astatic epilepsy (MAE or Doose Syndrome) since age 4. His seizures, which are generalized, have worsened significantly with the onset of puberty. The thought of major brain surgery and the potential side effects scare the heck out… read more

A MyEpilepsyTeam Member said:

Age is not a factor. My son just had a corpus callosotomy and he's only 2 years old.

posted over 2 years ago

What Has Been Your Experience With Surgery?

What Has Been Your Experience With Surgery?

Every neurologist I have seen tells me I need surgery to control my seizures. I have temporal lobe epilepsy that causes complex partial seizures. I've been through four different medications and still do not have control over the seizures.

I don't know if my condition is progressing or if the medication is causing me problems, but either way, I have noticed that I have forgotten a lot of things and my thought process is slower than it used to be. It's driving me nuts. I used to be the top of my… read more

A MyEpilepsyTeam Member said:

I know the feeling....Except my neurologists over the years were not saying the surgery aspect. But I have been thru 9 medications now. I'm taking 2 medications now. But have dealt with 9 over the… read more

posted over 5 years ago

Is There More In Depth Cognitive Problems For Someone Who Has Had A Corpus Callosum?

Is There More In Depth Cognitive Problems For Someone Who Has Had A Corpus Callosum?

My son has Dravet Syndrome a form of Epilepsy
He has significant cognitive delays. Almost 9 years ago he had a corpus callosum. He was struggling with learning. He went to a regular school. He was learning to write his name fairly well, learning both letters and numbers. About 6 years ago we had to move again in regular school. He no longer can write his name, doesn't know his alphabet or numbers any longer
This school year he is in a specialized school. ( He is struggling, they say he is… read more

A MyEpilepsyTeam Member said:

I never had Corpus Callosum , but I have hade similar experience
I was alway in a lower learning grade level than the grade that I was in. From elementary all the way through high school, I was in… read more

edited, originally posted over 2 years ago

Reaction!

Reaction!

If/ I may ask, should you not be comfortable answering by all means. How has everyone felt after their diagnoses? Was it hard to accept?

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member Sorry to hear that you have had to endure all of that! I was blessed that back in 1980, the focus was on my heart (because my older brother had to have open heart surgeryread more

posted 3 months ago

I Have Lower Left Eye Muscle Spasms. Is This A Common Thing With Epilepsy, I Also Do Have A Brain Birth Defect

I Have Lower Left Eye Muscle Spasms. Is This A Common Thing With Epilepsy, I Also Do Have A Brain Birth Defect

I also suffer from dysgenesis corpus callosum. Can affect my epilepsy triggers...or is it a warning sign, or it it another form of seizure?

A MyEpilepsyTeam Member said:

I have that in my eyes. I've never noticed it as a warning. I think mine are caused by stress.

posted almost 5 years ago

Hallucinations

Hallucinations

I have always "seen things",lately the things I've seen are as if I'm living in a horror film. I'll see blood splatter everywhere in my shower or on my doors. I commonly see "bugs". The other day it even looked as if one of my feet was "that of a corpses" and as though it was decaying. I regularly see people that others do not
I am curious what most everyone else has hallucinations of. I've got a few friends who see "bugs" as well, or just "flashes of light", but what is the strangest… read more

A MyEpilepsyTeam Member said:

I am clonic tonic how wonderful.

posted 5 months ago

Elepsia XR

Elepsia XR

It Works Well For Me Who Else Takes It

A MyEpilepsyTeam Member said:

Trur

posted 2 months ago

Was In Er Woke From Seizures Being Struck In Chest By Nurse Told By Dr

Was In Er Woke From Seizures Being Struck In Chest By Nurse Told By Dr

Being a past practioner I'm torn as what I should do so I'm asking advice?

A MyEpilepsyTeam Member said:

Randy, I agree. And we are never going to change how the majority population treats those with epilepsy or any other disorder or the mental "illnesses" (I put that one in quotes because the… read more

posted 29 days ago

I’m 30 Yrs Old Man Don’t Have A Car And Have Me Never Been Able To Get To Know A Lady To Turn Into A Potential Partner

I’m 30 Yrs Old Man Don’t Have A Car And Have Me Never Been Able To Get To Know A Lady To Turn Into A Potential Partner

I also would love to make more friends as well as people are quick to judge at times.

A MyEpilepsyTeam Member said:

Think about this in reverse- if you met a woman who told you she had
a certain condition how would you react? Lost my hubby-cancer-20 yrs
ago started to date 6 years later. An older sister advised me… read more

posted about 2 years ago

Question For People In Wisconsin Going To Medical College Of Wis & Froedtert Hospital

Question For People In Wisconsin Going To Medical College Of Wis & Froedtert Hospital

So i have been working on all my test to see if i can have the brain surgery
this is not my normal Dr i am seeing and i live over in Kenosha Wis so i have to get a ride out to the Millwaukee area
i am afraid that something is going to go wrong
I have not heard anything bad about them but it is a college
anyone have info on the hospital

A MyEpilepsyTeam Member said:

I cannot comment on Froedtert, but I had my brain surgery and testing at the University of Minnesota campus with successful results! The Neurology and Neurosurgery clinics are 1A and 1B down at the… read more

posted over 6 years ago