I'm assuming they have done EEG/vEEG or similar testings to detect the brain activity? Have you asked if there are any other options before splitting the electrical activity between the two hemispheres? Often they want to wait until a patient is older (closer to 20) and the body is finished done growing.

Age is not a factor. My son just had a corpus callosotomy and he's only 2 years old.

Hi Vulpix, thanks for the note. One of the challenges has been finding outcome data on kiddos like my son. Many cases involve younger kids who may not be mobile or verbal, but my son is higher functioning- both verbal and mobile with an IQ ~70. If his seizures were under better control, the team thinks he would test higher. He would gladly undergo the procedure, but I don't know that he (or my husband) grasp the potential risks. The docs think younger kid's brains adapt better post-surgery, because their brains and bodies are still developing.

My mom, doctors and I spoke about brain surgery before, they had said I was too young for it at the time. I'm old enough now, but it's more risky since my seizures have changed. I'm not a mom, but I think he's too young for it.

Yes- various testing done including EEG/vEEG, PET-EEG to rule out focal activity and to confirm generalized activity. We're waiting for a second opinion from another center and inquiring what other options there might be.