What CBD products do you guys use? I take a capsule 1-2/day and I know I feel worse when I don't....
I was wondering if anyone knows how I would begin to get CBD or Rick Simpson Oil which I’ve heard works wonderful for people Like me with generalized Grand Mal Epilepsy and have not had any luck with medication controlling my seizures
Over that past 4 months ive researched a lot about CBD oil and the many health benefits from help controlling seizures, to migrains, pain, overall health ect, im even an associate for CTFO CBD, check… read more
Has anyone tried and complementary therapies such as massage, aromatherapy, acupuncture alongside their AED's to help with the side effects of their medications or just to help lower their stress levels to try and control their seizures? I've had acupuncture and absolutely hated it so I'm wondering if its worth trying anything else.
Q. has anyone after a seizure begun to do involuntry twitching ? as well as muscle jerks ?
yes, that has happened to me a few times but it shortly after went away
Does anyone use medical marijuana (CBD oil) for treating juvenile myoclonic seizures? The medicine I take now doesn't completely work, and I'm seeking new treatment options.
Thanks for the info that's amazing! I could only wish but alas I'm still on big pharma drugs, but weaning off the pro levatiracetam, its a horrible drug that turns you into the type of person you… read more
Has anyone had experience with cannabidiol, the active ingredient in Charlotte's Web?
Ok I am new at this but I take the low thc oil. I was on opiods for pain management. The key is to make sure you wean yourself off with the help of your dr or pharmacist. Don’t just stop taking your… read more
My daughter is almost 5, she takes keppra for her seizures. They are controlled very well but she has mood swings. Is there anything that would help her?
I take Dilantin and high amounts of B12 to keep depression at bay. I can really feel the difference the B12 makes. I think the meds really deplete your system on B vitamins.
Does anyone have any information regarding the use of essential oils affecting epilepsy and triggering seizures?
This is true and the essential oil brand I use has a warning leaflet in the packaging that some can exacerbate and cause seizures.
Any good aromatherapist should be aware of this
Hi everybody! Hope that you've had a seizure free day today!
I wonder if anyone has been taking Mexidol for embettering your cognitive functions, short term memory loss for example. And if you did, please share how it worked with your anti-seizure drug.
I have been going through, what I could only describe as maybe. Mental health issues. Like depression, anxiety, panic attacks, insomnia. I don't get much sleep through the week. The only meds I take are just for the seizures. I do worry about the other problems. But the side effects of some of the meds I've seen for some of those problems I mentioned. They are just so scary. My Dr, just seems to want to Practice [ medicine] it's that bad with him. I have been thinking I might need to… read more
I know about the self esteem issues, also dealing with that. I was telling a woman about my health issues a few months ago. How id been chasing my epilepsy for the last 20 yrs. Maybe she didn't… read more