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CBD OIL?Complementary And Alternative Therapies

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

What CBD products do you guys use? I take a capsule 1-2/day and I know I feel worse when I don't....

Complementary And Alternative Therapies

A MyEpilepsyTeam Member asked a question 💭

I was wondering if anyone knows how I would begin to get CBD or Rick Simpson Oil which I’ve heard works wonderful for people Like me with generalized Grand Mal Epilepsy and have not had any luck with medication controlling my seizures

A MyEpilepsyTeam Member

Over that past 4 months ive researched a lot about CBD oil and the many health benefits from help controlling seizures, to migrains, pain, overall health ect, im even an associate for CTFO CBD, check… read more

Acupuncture

A MyEpilepsyTeam Member asked a question 💭

Has anyone ever tried acupuncture to help with seizures? No medicine is working and my mother thought acupuncture might be a good thing to try

A MyEpilepsyTeam Member

I have seen an acupuncturist /Holistic doctor for quite a few years now. He helps with overall health and is good for the side effects of the anti seizure meds. He has also been a help for my… read more

Complementary Therapies

A MyEpilepsyTeam Member asked a question 💭

Has anyone tried and complementary therapies such as massage, aromatherapy, acupuncture alongside their AED's to help with the side effects of their medications or just to help lower their stress levels to try and control their seizures? I've had acupuncture and absolutely hated it so I'm wondering if its worth trying anything else.

A MyEpilepsyTeam Member

The more you push yourself the farther you'll get, even if it's small steps. Those little things really do add up. Yoga did wonders for me. But I'm thinking of adding in protein powder shakes… read more

Complementary / Alternative Treatments

A MyEpilepsyTeam Member asked a question 💭

Q. has anyone after a seizure begun to do involuntry twitching ? as well as muscle jerks ?

A MyEpilepsyTeam Member

yes, that has happened to me a few times but it shortly after went away

Complementary / Alternative Treatments

A MyEpilepsyTeam Member asked a question 💭

Does anyone use medical marijuana (CBD oil) for treating juvenile myoclonic seizures? The medicine I take now doesn't completely work, and I'm seeking new treatment options.

A MyEpilepsyTeam Member

Thanks for the info that's amazing! I could only wish but alas I'm still on big pharma drugs, but weaning off the pro levatiracetam, its a horrible drug that turns you into the type of person you… read more

If Someone Can Help That's Okay Seeking Answers To Help Swelling Fingers And Wrists

A MyEpilepsyTeam Member asked a question 💭

Does anyone here have moderate to severe rheumatoid arthritis and still learning the steps how to live with this disease? I am going through many steps with it as we RA (rheumatoid arthritis specialist and I) have tried a few medications that did work briefly but due to bad side effects were needed to be changed
So I'm learning new things about RA medication and how to work with RA flares when my fingers begin to swell and no longer want to cooperate. I know this isn't going to be easy but I'm… read more

A MyEpilepsyTeam Member

Can't take Prednisone it's a steroid and I am allergic to steroids. My RA specialist is doing just fine with the steps we're taking as we've gone through multiple medications to where we are now. I've… read more

Complementary / Alternative Treatments Has Anyone Had Experience With Using Cannabidiol, The Active Ingredient In Charlotte's Web?

A MyEpilepsyTeam Member asked a question 💭

Has anyone had experience with cannabidiol, the active ingredient in Charlotte's Web?

A MyEpilepsyTeam Member

Ok I am new at this but I take the low thc oil. I was on opiods for pain management. The key is to make sure you wean yourself off with the help of your dr or pharmacist. Don’t just stop taking your… read more

Hi Everyone I Haven’t Been On For Quite A While I’ve Been Having A Lot Of Focal Seizures And It’s Affecting My Speech Really Bad Falling Too

A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I’m now on 250 lamotrigine twice a day

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Complementary / Alternative Treatments

A MyEpilepsyTeam Member asked a question 💭

My daughter is almost 5, she takes keppra for her seizures. They are controlled very well but she has mood swings. Is there anything that would help her?

A MyEpilepsyTeam Member

I take Dilantin and high amounts of B12 to keep depression at bay. I can really feel the difference the B12 makes. I think the meds really deplete your system on B vitamins.