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Complementary / Alternative Treatments

Complementary / Alternative Treatments

Does anyone use medical marijuana (CBD oil) for treating juvenile myoclonic seizures? The medicine I take now doesn't completely work, and I'm seeking new treatment options.

A MyEpilepsyTeam Member said:

I will warn you now, some Neurologists are very closed minded to this still so keep that in mind and go loaded with facts read up on it. knowledge is power. :-)

posted about 5 years ago
A MyEpilepsyTeam Member said:

I just started Cannabis treatment with dryfor my Migraines and CBD oil for my seizures, its not like buying the street stuff at all i really don't feel high. it is an investment at first but in the long run it will Hopefully) pay for itself. I am based out in montreal canada and its legal accross the country but you need a card to prove its medical it comes with your first order.

posted over 5 years ago
A MyEpilepsyTeam Member said:

I have been so skeptical on the use of any "weed supplements". I have been doing a lot of research and was given much helpful information to make my final decision on trying CBD. I was given, projectCBD.org & leafly.com to assist with educating me on product usage/research.
What really got me was being told about Dr. Ethan Russo author of "A tale of two Cannabinoids". https://www.theroc.us/researchlibrary/Russo_A%2...

As well as this information about him. FYI he is a Neurologist... from UofW and other
https://cannabisclinicians.org/ethan-russo-md/

I'm on 5 epilepsy meds, which are ripping my insides apart (14yrs now) & tearing my self esteem to shreds... I am unsure of how this will turnout, on day 2. But I am more hopeful with the CBD than all my Rx's put together

posted almost 5 years ago
A MyEpilepsyTeam Member said:

The latest epilepsy drug is CBD. In very high doses. Yes, it's approved for only the 2 very severe types of epilepsy in kids but, nonetheless, it is CBD. CBD can be bought OTC at least in the US. Hemp is the only legal form for getting CBD in all states in the US. It is a different plant, although related. It does have a very small amount of THC in it but isn't psychoactive. (Smoking a dress made out of hemp is only going to make a very expensive dress into ash.) It does have medicinal benefits though. I think it's legal throughout the US anyway. I get mine from a company called Green Mountain (obviously from Vermont.) It is ground plant in coconut oil. https://bluebirdbotanicals.com/ is another source that can be shipped anywhere in the us. It does have up to 0.3% THC but does not get you high. It has a small chance of showing up in urine testing though so if your job depends on it I'd stay away for a few days. Hopefully epidiolex will be approved for all epilepsy ( can be used "off label" probably for anyone - my MD was talking about prescribing it for me) so that people can be less afraid of it.

posted almost 4 years ago
A MyEpilepsyTeam Member said:

Medical Marijuana works great for migraines if you suffer from them i honestly would recomend at least giving it a try and if it does'nt work well at least you know.
i do have to admit in montreal where i am its expensive to start.

edited, originally posted about 5 years ago
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