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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Complementary And Alternative Therapies

Complementary And Alternative Therapies

I was wondering if anyone knows how I would begin to get CBD or Rick Simpson Oil which I’ve heard works wonderful for people Like me with generalized Grand Mal Epilepsy and have not had any luck with medication controlling my seizures

posted December 8, 2018
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member i have uncontrolled seizures and cbd works for me. its just i needed the stronger ones.
@A MyEpilepsyTeam Member in indiana, usa, you can buy cbd oil in health stores but you cant grow it... well not yet. i go to a local health store and buy Koi cbd oil (like the fish). watch out thou because some of um will get a lot of 'flavoring' and a little bit of the cbd oil. koi is a little bit of flavor and a lot of cbd oil. i used to have um serval seizures a day and after the oil i am seizure free for about 3 months and counting.

posted December 9, 2018 (edited)
A MyEpilepsyTeam Member

CBD is also a derivative from hemp.what works best for me is marijuana

posted December 26, 2018
A MyEpilepsyTeam Member

The best way and place to get staryed is online you justhave to be careful and now your states regulations and rules and be sure the site is legitimate, it will take resurch so be sure to be up to this commitment to do this. This is how i got into CBD. I would look into rick Simpson oil first . I tryed CBD first and due to the severity of my seizures they didnt make a big enough dose enough to control my epilepsy or seizures so I would have to spend a expensive amount of money to control my seziures with it.

posted December 13, 2018
A MyEpilepsyTeam Member

You can buy CBD oil in Holland & Barrett ( if you live in the UK ) Large pots are available too I'm afraid it didn't work for me & I've had uncontrolled Epilepsy for 40 years now

posted December 9, 2018
A MyEpilepsyTeam Member

CBD oil just made me more sleepy than ALL my meds, but I’ve never heard of the other. And everyone responds differently to different things. Also, make sure that you know which strain your brain needs (so many different channels - all the fun chemistry stuff will haunt you 😳)

posted December 9, 2018

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