I have not had a problem
I just posted a similar question yesterday so yours popped up. I have found that I don’t enjoy the rides that I’ve always loved so much. I think it’s because they remind me too much of my seizures… read more
Not being able to drive
Not being able to get in some roller coasters etc
Don't worry about not being able to drive! I had seizures in cars and nearly killed myself so many times... I had to hang it up.
I’ve always been a big theme park fan, I loved roller coasters and exciting rides. I’m from Orlando and that was what I did for fun! I’ve taken my kids to theme parks for years. Now after a few years into epilepsy, these things make me nervous. I have trouble putting my finger on it… I just don’t enjoy them. I went on vacation this summer and realized it’s rides ( physical motion) as well as vision and sound. I’m sure I’m not the only one
I was tested and am not photosensitive, but I don’t like… read more
I think that I wouldn't mind, going to a theme park, and such etc, I think the last one I recall I was at, was i think in jr high, at Kings Island, 40 some yrs ago, I thought was fun, but the last I… read more
Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.
I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏
If you where to get on a Roller Coster, whould you ride it and with whom.
I honestly can't remember if I ever been on 1.
Roller coaster feeling, racing heart, shortness of breath.
Im 2yra post temporal lobe tomy (L) and Im noticing I now have vertigo (which I never had previously). I tried to do roller coasters and Was done after just 2. I used to be a roller coaster junkie pre-op, now, not so much.
Chapter 2
After I got a grasp of all the emotional stuff I went through I do amazing. Most of what they took brain wise was scared and didn't work because of the Enchphilitis at 4
I… read more
Hi friends,
As i have been getting to know my seizures better ive noticed certain things. I tried explaining this to my neurologist, he kinda brushed me off by saying "i havent really heard of that." which isnt something i want to hear from a doctor. He made me feel a bit crazy and I left that appt feeling more confused than ever. So please let me know if you yourselves have felt this type of seizure or you have heard of this. I just want someone to validate that im not a nutcase.
I have had… read more
@A MyEpilepsyTeam Member hi Margery, yes ive already been diagnosed with epilepsy and im currently taking meds for it. I just wanted to see if my specific type of seizures sounded familiar to anyone… read more
My pediatrician placed me on Dilantin as I was only 1 year old going on 2 at the time.