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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Topiramate"

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From Trokendi Xr To Topirimate And Seizures Again

From Trokendi Xr To Topirimate And Seizures Again

I was wondering if this has happened to anybody else? It is the same drug so I’m confused as to what is going on.

A MyEpilepsyTeam Member said:

Please don't listen to others- they are not you. Sometimes just
switching meds need a little time before working.Your current
confusion could be from that transition too. If this persists tell
your… read more

posted about 2 years ago

Medication Dosage

Medication Dosage

Hello everyone! Yesterday I went to my doctor and I got my Topamax dosage upped by 25 mg a night. Today, I've felt dizzy and confused, tonight my left cheek bone area went numb/ tingly (a side effect to the Topamax that I had when I first started the medication in April) I'm just wondering if this is normal? It's like when I first started the meds... You know what i mean? The tiredness, confusion, dizziness, tingling, that all happened the first week I was on the medication and then it subsided… read more

A MyEpilepsyTeam Member said:

I'm on topamax pet and I feel the same way still

posted almost 6 years ago

Topiramate

Topiramate

I've tried a few meds, been taking lamotrigine & lacosomide for years with no joy, still have several seizures a month. Neurologist prescribed topiramate today. Does anyone take it? Any side effects? Any success?

A MyEpilepsyTeam Member said:

Hi
I started topiramate a few months back and at first thought "This isn't bad. Only on the increase I get some side effects" then once I'd got to the dose my neurologist wanted me on which is only… read more

posted over 6 years ago

Weaning Off Keppra And Upping The Topiramate

Weaning Off Keppra And Upping The Topiramate

Hey everyone. My girlfriends son is 10 years old and suffers from seizures. Her and his father wanted him off the keppra. So we are slowly weaning him off. His father and him went to the neurologist the other day and they said she is going to up his Topiramate or trokandi. Well since we upped it to Another 50 mg like she said he is staying up all night and sleeping until the afternoon. I was wondering if we can have him take it during the day and if anyone else had this side effect. And how… read more

A MyEpilepsyTeam Member said:

Nobody but this child's Dr. knows the best way to treat his epilepsy
Seizures can be caused by many things so treatment varies. Don't
go by what affects others it does not apply. Work with his doctor… read more

posted about 2 years ago

Topiramate/any Other AED And Nightmares

Topiramate/any Other AED And Nightmares

Has anyone else been experiencing a higher rate of nightmares since being put on medication? I've been on Keppra, Lamictal and now Topiramate and I'm having nightmares at least once every night now.

A MyEpilepsyTeam Member said:

No, not at all. I was on Keppra and gained so much weight it was ridiculous. I couldn't wait to go off of it. Now I am on Dilantin and Topiramate and doing fantastic. I have lost all the weight… read more

posted about 5 years ago

Hair Regrowth Products

Hair Regrowth Products

Update: Okay so I'm getting responses but none that answer my question. I appreciate hearing everyone's experiences but I really do need my question answered.

What hair regrowth/strengthening products do you use? (Minoxidil aside, because I already use it)

Topamax (Topiramate) badly damaged my hair follacles when I was on it a handful of years back. (I'm now 33 yrs old). I use Minoxidil, but I am wondering what else I could be doing. Any suggestions from those with the same issue?

A MyEpilepsyTeam Member said:

Thank you, Danielle! Isn't it odd how we all react differently to different drugs? Some of the side effects of these drugs are insane. Topiramate made my hair fall out, gave me horrible acne and made… read more

posted over 3 years ago

CBD Vs Ativan

CBD Vs Ativan

I have clusters of seizures that take hours to break (100-150 seizures) and i take 2-3 milligrams of Ativan to break the cluster. Anyone know if CBD would benefit me.

A MyEpilepsyTeam Member said:

I use Ativan and CBD oil, it doesn’t seem to bother me at all. In my case, I definitely need both, especially if stressed or tired.

posted about 3 years ago

Lamictal Vs Tegretol For Left Temporal Lobe Epilepsy?

Lamictal Vs Tegretol For Left Temporal Lobe Epilepsy?

Has anyone taken one of these meds for left temporal lobe epilepsy, what have been your side effects? Have you had success?

At the moment I am on Keepra 1250mg and Clobazam 20 mg (25 mg around my prd) This year I have had an increase of complex partial seizures (from 1 a year to 3 a year); I normally have about 5-9 simple partial seizures a month; around my ovulation and period

A MyEpilepsyTeam Member said:

@A MyEpilepsyTeam Member I am on the same combo except not topiramte; wondering if that helped in anyway?

posted over 4 years ago

Tegretol/ Carbetrol User

Tegretol/ Carbetrol User

Hey guys,

I don't want to waste your time, so I will cut to the point. I'm taking 1200mg and the blood level 12. I take 600Mg AM and 700Mg PM, so thing what happens, during the day I have no seizure at all, but once I take the medication at night, I will have seizure during sleep (Only), I don't know why. The only difference is that I'm taking 400mg Carbetrol at night that's the only time I take Carbetrol.

Has any one has a problem like that?

Note: other medication I'm taking alone: Lyricaread more

A MyEpilepsyTeam Member said:

OH MY!!!!!!! The neurologist tried to change my medications to toperimate and IT DID NOT GO WELL!!!!!!! I lasted 2 days and ended up with cellulitis and even now I am still trying to shake that… read more

posted over 2 years ago