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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Functional hemispherectomy"

Surgery: Yes Or No?
A MyEpilepsyTeam Member asked a question 💭

The side effect of having surgery is bad memory, speech and others. I said no right away when my doctor told me to do it because its not 100% curable and it effects our memory very bad. But now after suffering the horrific memory lost and not being able to keep my memories, i am leaning more towards just doing the surgery. Does anyone know if our memory and speech gets worst after surgery, will it stay that way or it will get better over time? Will i be able to remember things after not having… read more

A MyEpilepsyTeam Member

My long term memory is doing great. My short term memory is gone. I have to write down basically anything I truly need to remember. My speech has stayed the same after the surgery. One thing about… read more

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Has Anyone Got A Child That Has Had A Hemispherectomy And How Have The Results Been?
A MyEpilepsyTeam Member asked a question 💭
Left Temporal Lobe Surgery
A MyEpilepsyTeam Member asked a question 💭

My son is set to have left temporal lobectomy on September 28 2018. I am wanting to talk to people who have had this done and your experiences. We are very nervous.

A MyEpilepsyTeam Member

I had this surgery in 2000. I have issues with processing information, lower stress tolerance, impulsivity, and light and noise sensitivity. I also have additional memory problems that cause confusion… read more

Did Epilepsy Surgery Affect Your Artistic Abilities?
A MyEpilepsyTeam Member asked a question 💭

My neurologist has discussed surgical options with me and I'm I was leaving them as a last resort because it scares the crap out of me. But now I'm starting to run out of options with medications. So I have a question for those of you who have had experiences with surgery (preferably laser ablation or gamma knife). I'm an artist, and I suffer from seizures located in my right temporal lobe. Did any of you that had surgery in that area lose any artistic abilities? Thanks!

A MyEpilepsyTeam Member

I havent had the surgery also have right temporal lobe gelastic seizures. What I have lost is an interest in reading books. I hope you dont lose the ability . that would devastate me.

Problems After Surgery?
A MyEpilepsyTeam Member asked a question 💭

So I’ve recent attended a support group-type thing at the hospital I’m due to have my op at and people who are thinking about having the op and people who have had the op attend so questions can be asked about anything. I think it’s just caused MORE worry for me! Just wanted to know what other problems people have had during and after surgery. Things like one guy mentioned to me that chewing has become difficult for him and another issue that was raised was sight...I had a rough idea that sight… read more

A MyEpilepsyTeam Member

So your having a part of the hippocampus removed?

Thats the surgery I was offered, has anyone mentioned about the loss of memory and the fact that what you loose may be permanently lost?

That was… read more

Left Temporal Lob Surgery With Part Of Hippocampus Removed
A MyEpilepsyTeam Member asked a question 💭

Has anyone have there LTL hippocampus area removed ?
What did you feel like afterward, were you able to talk, were you dizzy etc...
How long did this all last.
I was told my seizures could jump to my rt brain once removed from lft because I have had them for so long.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member you are lucky. i use to have seizures every couple of hours. after the surgery i only have 1 spaceout seizure (auras) at night. that and when i am sick.

Brain Surgery
A MyEpilepsyTeam Member asked a question 💭

My last option is brain surgery but the thought of it terrifies me..has anyone had this that can tell me your outcome..did it work? What if any were your side affects after.

A MyEpilepsyTeam Member

Surgery worked for me. 11 and a 1/2 years seizure free. Some side affects like memory difficulties but you come up with strategies to compensate.

Does The Op On The Brain Have Side Effects?
A MyEpilepsyTeam Member asked a question 💭

I have a friend who I haven't seen for about 3-4yrs who had the Operation (don't know what it's called) and since she's had the Operation she has put on a bit of weight has panic attacks if left alone around people she doesn't know and has lost her self confidence so much that she can't go anywhere without someone she knows with her
Before the Operation apart from the seizures she was fine does anyone have any answers to this question or have experienced any of the above
I got offered the… read more

A MyEpilepsyTeam Member

I would suggest a dr’s visit, the main results of my op was immediately after surgery was no danger recognition. I had to be taught how to cross the road again as the first time going to the shop I… read more

Ginger Gene
A MyEpilepsyTeam Member asked a question 💭

Apologies if I have asked this question before but I have a theory I want to share and get opinions. From the people I have spoken to with epilepsy and other brain issues it seems that they have from some point in their family inherited the "ginger gene". I have the ginger gene and is visible in me because I have ginger hair but I know other sufferers that don't have ginger hair but this gene has been passed down many generations to them. I am thinking this ginger gene is floored or damaged in… read more

A MyEpilepsyTeam Member

I’m blond.. but I do have ginger pubes?!?! 🤪

Numb Post-op?
A MyEpilepsyTeam Member asked a question 💭

I had a temporal lobectomy 3 weeks ago. My scar is basically healed but the skin itself is still numb to me completely. Did anyone have a similar feeling post op? Will feelings ever return to the area of skin they cut?

A MyEpilepsyTeam Member

I had surgery 10 months ago to implant a device in my head that will measure my seizures and try to control them. My seizures originate from both hippocampus. Anyway, I was numb for quite a while… read more