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The side effect of having surgery is bad memory, speech and others. I said no right away when my doctor told me to do it because its not 100% curable and it effects our memory very bad. But now after suffering the horrific memory lost and not being able to keep my memories, i am leaning more towards just doing the surgery. Does anyone know if our memory and speech gets worst after surgery, will it stay that way or it will get better over time? Will i be able to remember things after not having… read more
My wife and I both came independently to the same conclusion that I am not having surgery. Not worth the risk, the recovery time and in my position the danger of losing my ability to function in my occupational and individual business role.
My long term memory is doing great. My short term memory is gone. I have to write down basically anything I truly need to remember. My speech has stayed the same after the surgery. One thing about my epilepsy is when I have a seizure I never know when I have one. I now have an RNS so I can send weekly information to the hospital and they can tell when and if I had a seizure. Living alone makes it tough. I am in a four generation family with epilepsy so epilepsy is something that no longer bothers me. 🙂
I had the surgery as a last resort because am drug resistant and it was the best option for me seeing where my seizures were and located. As for my memory and the memories I had I can't tell you if they got worse or stayed the same as it was never very good. I could always tell you something that happened 5 or 10, 15 years ago or 5 weeks ago but 5 seconds or 2 minutes of what happened today I couldn't tell you. I still have seizures with the surgery mostly nocturnal and sometimes I have breakthrough seizures on unexpected days that was one unexpected thing that changed when I had the surgery.
@A MyEpilepsyTeam Member there is a lot of brain surgeries out there. i had the hemispherectomy (they permeant disconnected 1 side and removed a part that is triggering the seizures). that was in 2001. since then there is a lot more advancement. anyway... my surgery side effects was common at that time... well all but the seizure free part. i am just telling you what to expect if you go with a hemispherectomy option.
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