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My 6 yr old has Partial Complex seizures..And multi drug resistant until Banzel..Still on Keppra TID(3X/day)..The 1st wk, she had a tonic clonic seizure and didnt respond to 2 doses of Diastat
… read more
Has anyone have this? What treatments helped you ? My son is 13 years old and is having clusters since introducing Banzel . We removed Banzel but the cluster seizures won’t go away. He has 15 of them yesterday … any info is appreciated.
My doc does not care… I am
Looking for other doctors . I live in Dallas
Do you know what
Type of seizures you get Did your Tell you did you ever had an EEG EKG Blood count done some Med's
Might have side effects ask your Dr questions and how many mg are the meds you ask… read more
I was just wondering if anyone has tried
or is on any of the meds above. ?
My past dr (and the one I have now) won't let me try them,
mainly because of the risk of vision loss.
I'm kinda curious and wondering if that has really happened ?
Or were there other effects besides the vision?
I've been on two out of the three that you show about . I've been on Banzel and Potiga. Banzel never gave me bad side effects , but didn't have the best control on my seizures. Potiga was a strange… read more
Not sure what you're wondering about Banzel, but here are some factoids
Generic name: Rufinamide
Year introduced: 2008
Daily Dosage Range: adults (Phone number can only be seen by the question and… read more
My doctor is recommending cenobamate for my son, who is 13 year old. He has focal onset aware seizures and take Oxtellar XR. He has tried Keppra and Banzel and both have aggregated the seizures. Does anyone have experience with cenobamate ? Is this too strong for a kid ? What symptoms do you observe ?
Seizure control should be your first priority. If side occur then worry bout them as you did with previous meds. Dr knows his seizures best & how meds will affect him. My mom 50 years ago if others… read more
I was looking for some advice from teenage parents and kids on how parents can help their teenagers cope with epilepsy and the medicines - symptoms , help to build confidence that they are not defined by epilepsy !
Do you have trouble at school ? What are somethings parents can do to help kids ?
My son will soon be in high school and I worry about his future all the time. He is very hardworking, focused and tries to be positive but I know how much this hurts him… not being able to… read more
A therapist or psychiatrist are a great aid in dealing with the emotional toll but also in helping to reduce the stress levels (venting to this person and professional advice on how to get more… read more
Im on carbamazepine, and Im not sure if Im just experiencing a side affect. But I feel like I fall a lot by tripping, falling down stairs, losing balance. And things fall out of my hand when I feel like I have a full grasp, im always knocking things over or accidentally hitting my head/body on things, constantly stubbing my toes etc. I have been getting so frustrated and upset lately that its leading to aura seizures again. Does anyone else experience this or is it maybe not to do with my… read more
There are many times when I’m catching the wall or furniture. Then I have times where my head feels heavier than what it normally feels. My balance is off at times and there have been many time when… read more
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