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I'm on mix of several meds all the time.Topamax seemed to be a good fit until I ended up in the ER with a horribly painful kidney stone, my first. I was told it was caused by that med. I was put on Briviact. Always tired, naps and no motivation. I've also been gaining weight since I started it. For a guy that weight has been a lifetime issue, both socially and my psych. I worked hard to get to 150, down from 225 as a teen. I felt proud and so good for my entire body and anti social feelings… read more
If you are still having seizures while on the meds, you might have Refractory Epilepsy ( resistant to the meds )
It also Sounds like you’re experiencing many side effect from the meds .like
Weight gain
Tired during waking hrs.
Kidney Stones
And many other side effects
I am on my 9th ASMs, I failed 6 due to side effects and 3 due to seizure control
@A MyEpilepsyTeam Member , Welcome to the site! Sorry to hear about all the issues you’re having. I’m 48 & years ago my Pediatric Neurologist put me on Topamax but it made me lose to much weight & so I had to get off it. I’ve never taken Briviact & so I can’t give you any feedback on that. Like the AI says, you should talk to your doctor & really push them to listen & stress to them all the issues you’re having. If they refuse to listen to you, you could try seeing another Neurologist & see what they say. Try looking at this link & it’s information. It lists Vimpat as a similar medication & I’ve been on that since late 2019. I haven’t experienced any bad side effects except a little shaking of my fingers, but my dosage was adjusted & it’s been fine. Keppra is a medication that is a medication that often gets mentioned on here. It made me so tired that I had to take a nap every day & eventually I started having trouble sleeping & so I got off it. Keppra is sometimes known to cause mood swings, make people not act like themselves, all known as the Keppra Rage, but I was only on it for about 3 months & never had that. Some people don’t experience any issues with it & some can’t find anything else to work & so they put up with the side effects. Good luck. Your friend in Texas, Becky https://www.google.com/search?q=meds+similar+to...
First off, the journey described here — losing 75 pounds and building that daily discipline — is genuinely impressive, and it makes complete sense that feeling that slipping away would be deeply frustrating and discouraging.
Fatigue and low motivation are listed as known side effects of Briviact, so what's being experienced Show Full Answer
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