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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question πŸ’­
Newbury, UK

In the last year, i finally managed to get to my epilespy appointment, knowing it was rebooked 3 three times. Every time they always tell me to explain what the seizure is like and how long etc. Most of the time i do not know, so my mum had to answer for me because i lose my vision in the seizure. Wondering what medications i am on yet they want to take me off a few of them. In the end they seem to think i have epileptic and non-epileptic seizures.

July 10
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A MyEpilepsyTeam Member

yes it is but it's important that you speak to your neurologist and other health professionals who will be involved with your pregnancy as your neurologist may need to lower your medication until the birth
I wish you well and I hope all goes well πŸ™

July 10
MyEpilepsyTeam

It's really common to feel frustrated after a long-awaited appointment, especially when it's been rescheduled multiple times. Having your mum there to help describe your seizures was actually a great move β€” witness accounts are incredibly valuable for doctors trying to piece together what's happening.

Some MyEpilepsyTeam Show Full Answer

It's really common to feel frustrated after a long-awaited appointment, especially when it's been rescheduled multiple times. Having your mum there to help describe your seizures was actually a great move β€” witness accounts are incredibly valuable for doctors trying to piece together what's happening.

Some MyEpilepsyTeam members have shared similar experiences, with one noting they have both generalized epilepsy and non-epileptic seizures. So you're definitely not alone in this. Having both types can make diagnosis and treatment trickier, because they have different causes:

- Epileptic seizures are caused by abnormal electrical activity in the brain
- Non-epileptic seizures don't involve that same electrical activity and often don't respond to anti-seizure medications

This is likely why your doctors are considering adjusting your medications β€” some may simply not be effective for non-epileptic seizures. A video EEG monitoring test is considered the gold standard for distinguishing between the two types. If your doctors haven't mentioned this yet, it may be worth asking about it at your next appointment.

Any medication changes should always be discussed carefully with your neurologist before making adjustments.

July 10

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