YES!!! I was diagnosed with non epileptic seizures 3 years ago and have been battling them since!! My doctor doesn’t know what’s causing and is still working with me on trying to control them. The worst is that I typically am a raging b*tch after a seizure which is very out of character for me so when I had a cluster at work a few days ago I got welcomed back with horror stories about biting and fighting the paramedics who were trying to help. Tired of everyone looking at me like I’m fragile and might just drop at any second, very very hard to find people that understand. I take 2000mg of off brand kepra that seems to help alittle but I still experience episodes every 3ish months which obviously affects my ability to drive, participate in social events, and is starting to affect my work as a bartender as it’s getting harder for me to remember recipes to drinks I’ve been making for years. You’re not alone! Stay positive and keep smiling!! I feel so good to be able to talk about this demon without getting the sorry sympathy I’m used to getting. I’m still having trouble bouncing back from my last episode. How long does it take you to feel “back to normal” after an episode??
yes i have NES due to TBI. if you ever want to talk just let me know.
I have been given advice to stay off generic brand epilepsy medications. All of my breakthrough and absence seizures have been while on those.
The answer is no many thanks Alan x
I believe I have but they still don't know what causes mine.