I don’t know if they still has a side effect. But I wasn’t on it too long because the doctor said that the medication. Can soften. The teeth gums. Causing them to bleed, easy after brushing.
June 22
That was the second one I was on years ago as a little boy after I was taken off of the phenobarbital I couldn’t take it, though cause I kept breaking out and rashes. It just didn’t work well with me.
June 22
It sounds like the message got cut off — it seems like switching medications in the past may have led to seizures? That's a really valid concern, especially after 45 years on Dilantin (phenytoin). Long-term use is something worth having a detailed conversation with your neurologist about.
Changing anti-seizure medications is Show Full Answer
It sounds like the message got cut off — it seems like switching medications in the past may have led to seizures? That's a really valid concern, especially after 45 years on Dilantin (phenytoin). Long-term use is something worth having a detailed conversation with your neurologist about.
Changing anti-seizure medications is never a simple swap. A few important things to know:
- Medications need to reach a steady level in your bloodstream to be effective
- Switching too quickly can cause your levels to drop, which can trigger seizures
- A neurologist will typically do a gradual transition, slowly introducing the new medication while tapering off the old one
It's completely reasonable to push back and ask your doctor *why* they want to change, and to share your history of previous switching attempts causing seizures. That history matters a lot.
If you feel unheard, asking for a referral to a specialist epilepsy center could help you get more tailored guidance.
You're not overreacting — 45 years of stability is significant, and any changes should be approached very carefully and slowly.
June 22
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