Have you tried some of the "newer" medications Angie? I didn't tolerate meds that well either. I was on Topamax for years and my hands now suffer because of it. I have lots of numbing/tingling in my fingers. Currently I'm on Vimpat and Lamictal. IF needed I have Lorazepam 1 mg and Nayzilam 5mg. It's the nasal spray. Thankfully I've never had to use the spray. It's worked out well for me for the past year and a half. I've had NO episodes! Thank You Jesus!
I'd keep this in mind also, NOT having a good medication plan can attribute to the occurrence of your episodes. Me, I got on my Neurologist's nerves! When I tried something and I didn't like what it did to my body, we tried something else. You know your body better than any Neurologist ever could. Another thing that worked for ME is I stopped reading the " what could happen" or the med list, that you get from the pharmacy, if I was trying a new medicine. Psychosomatic reactions are REAL! I know it from experience.
Again, all the best to you. 🙂

I can't control when it will come out, so I would have to be alone for 2 days.

Yes I had .. as I am a person to give all things a go if it helps

They've run out of medication to give me as most of them have severe side effects which are too much to handle in addition to seizures that come on with no warnings, am not aware of whats happening during seizures and when I recover from them I have no recollection of what has occurred... I mean if there were medical places to go to when I am due seizures that I can stay til when my seizures finish

@A MyEpilepsyTeam Member, I'm not quite understanding what yo mean by " A place to temporary go to release these seizures."
I'll share this with you, when I was having heavy episodes. I found out that I as my kids say, going off for no reason, well FOR ME it was connected to my medication. I was upset lots and angry. Changed my meds and my attitude changed along with it.
I pray you find what you're looking for. 🙂

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