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"So my neurologist does not want me to ride my horse or go swimming anymore. He wants me to ride an exercise bike or use the treadmill. So I'm obeying doctors orders. Yesterday late afternoon while on the treadmill at home I had a seizure!? Was a partial seizure. I'm not sure if I pulled the emergency stop or if I just stopped walking and as I moved away the emergency stop was triggered? I did not fall, thank goodness!" -A member on MyEpilepsyTeam
On MyEpilepsyTeam, the social network and online support group for those living with epilepsy, members talk about a range of personal experiences and struggles. Treatments are one of the top topics most discussed.
Here are some question-and-answer threads about treatments:
Here are some conversations about treatments:
• Adjusting the dose of medicine just slightly improved side effects for some people: "I was having a lot of head jerking, tipsy balance, nausea, poor memory and communicated this to my neurologist. He agreed to lower my dose of Lamotrigine from 200mg to 175mg and I can't believe the improvements in my side effects."
• A user explains how she benefitted from hormone testing: "In all the testing I have been put through to find out why I've been suffering from seizures since I was 9, no one has ever thought to check my hormone levels... I found a study that showed 69% of all women who suffer from this type of epilepsy also suffer from estrogen dominance, also known as low progesterone!"
• Hair loss can be a side effect of many epilepsy medications: "Hey guys does anyone else experience a lot of hair loss with the meds and have you found any ways to remedy this? I’ve been on most of the medication s but not all and I find they all make my hair come out in handfuls."
Can you relate?
Have another topic you'd like to discuss or explore? Go to MyEpilepsyTeam today and start the conversation. You'll be surprised just how many others may share similar stories.
Feel free to ask a question here.