Connect with others who understand.

sign up log in
About MyEpilepsyTeam

Treatment and Epilepsy

Posted on October 12, 2018

"So my neurologist does not want me to ride my horse or go swimming anymore. He wants me to ride an exercise bike or use the treadmill. So I'm obeying doctors orders. Yesterday late afternoon while on the treadmill at home I had a seizure!? Was a partial seizure. I'm not sure if I pulled the emergency stop or if I just stopped walking and as I moved away the emergency stop was triggered? I did not fall, thank goodness!" -A member on MyEpilepsyTeam

On MyEpilepsyTeam, the social network and online support group for those living with epilepsy, members talk about a range of personal experiences and struggles. Treatments are one of the top topics most discussed.

Here are some question-and-answer threads about treatments:

Does anyone have any personal suggestions for how to get rid of nausea and dizziness from my medicine?

How many medication side effects would you endure to help with your epilepsy?

I'm afraid of the side effects of epilepsy meds. Am I making a mountain out of a molehill?

Here are some conversations about treatments:

Adjusting the dose of medicine just slightly improved side effects for some people: "I was having a lot of head jerking, tipsy balance, nausea, poor memory and communicated this to my neurologist. He agreed to lower my dose of Lamotrigine from 200mg to 175mg and I can't believe the improvements in my side effects."

A user explains how she benefitted from hormone testing: "In all the testing I have been put through to find out why I've been suffering from seizures since I was 9, no one has ever thought to check my hormone levels... I found a study that showed 69% of all women who suffer from this type of epilepsy also suffer from estrogen dominance, also known as low progesterone!"

Hair loss can be a side effect of many epilepsy medications: "Hey guys does anyone else experience a lot of hair loss with the meds and have you found any ways to remedy this? I’ve been on most of the medication s but not all and I find they all make my hair come out in handfuls."

Can you relate?

Have another topic you'd like to discuss or explore? Go to MyEpilepsyTeam today and start the conversation. You'll be surprised just how many others may share similar stories.

Feel free to ask a question here.

A MyEpilepsyTeam Member said:

How often did that happen?

posted about 1 month ago

hug

Recent articles

Myepilepsyteam carousel why did terms for seizures change
Article written by Mary K. Talbot In 2017, the International League Against Epilepsy (ILAE)...

Why Did Terms for Seizures Change?

Article written by Mary K. Talbot In 2017, the International League Against Epilepsy (ILAE)...
Myepilepsyteam carousel types of focal seizures
Article written by Jessica Wolpert About 50 million people have epilepsy worldwide, but for...

Types of Focal Seizures

Article written by Jessica Wolpert About 50 million people have epilepsy worldwide, but for...
Myepilepsyteam carousel treatment for focal seizures
Article written by Nyaka MwanzaFocal seizures begin in one hemisphere (side) of the...

Treatments for Focal Seizures

Article written by Nyaka MwanzaFocal seizures begin in one hemisphere (side) of the...
Mht myepilepsyteam dlgs carousel
Article written by Mary K. Talbot Your child has been having prolonged seizures. You’ve been...

Getting the Best Care for Your Child with Dravet or Lennox-Gastaut Syndrome: A Parent’s Guide

Article written by Mary K. Talbot Your child has been having prolonged seizures. You’ve been...
Mht myepilepsyteam dravetsyndrome article1 carousel
Article written by Laurie Berger One in every 20,000 to 40,000 children has Dravet...

Dravet Syndrome: Symptoms, Causes, and Treatments

Article written by Laurie Berger One in every 20,000 to 40,000 children has Dravet...
Mht myepilepsyteam lennoxgsyndrome article1 carousel
Article written by Laurie Berger Lennox-Gastaut syndrome (LGS) is a severe form of epilepsy with...

Lennox-Gastaut Syndrome: Symptoms, Causes, and Treatments

Article written by Laurie Berger Lennox-Gastaut syndrome (LGS) is a severe form of epilepsy with...
Coronavirus
Article written by Kelly Crumrin Those of us living with pre-existing health conditions like...

Canceling Is Kindness: Keeping Safe From COVID-19 With Epilepsy

Article written by Kelly Crumrin Those of us living with pre-existing health conditions like...
Sudden death risk in epilepsy can wane over time
"This analysis shows that there is hope. If you're low-risk, you're likely to stay that way. If...

Sudden Death Risk in Epilepsy Can Wane Over Time

"This analysis shows that there is hope. If you're low-risk, you're likely to stay that way. If...
Mht ad causesofseizuresandepilepsy thumb
Article written by Kelly Crumrin Epilepsy is a spectrum of neurological disorders involving...

Causes of Seizures and Epilepsy

Article written by Kelly Crumrin Epilepsy is a spectrum of neurological disorders involving...
Mht ad overview thumb
Article written by Kelly Crumrin Epilepsy is not one single condition. Epilepsy is defined as a...

Epilepsy – An Overview

Article written by Kelly Crumrin Epilepsy is not one single condition. Epilepsy is defined as a...
MyEpilepsyTeam My epilepsy Team

Two Ways to Get Started with MyEpilepsyTeam

Become a Member

Connect with others who are living with epilepsy. Get members only access to emotional support, advice, treatment insights, and more.

sign up

Become a Subscriber

Get the latest articles about epilepsy sent to your inbox.

Not now, thanks

Privacy policy
MyEpilepsyTeam My epilepsy Team

Thank you for signing up.

close