Is Anyone Taking Fycompa? What’s Been Your Experience Like? Thank You. | MyEpilepsyTeam

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Is Anyone Taking Fycompa? What’s Been Your Experience Like? Thank You.
A MyEpilepsyTeam Member asked a question 💭
posted September 14, 2021
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A MyEpilepsyTeam Member

I was taking keppra and limictal and I continued having seizures. Then fycompa was added at 6 mg. It is my miracle drug. I’ve been seizure free for three years.

posted October 3, 2021
A MyEpilepsyTeam Member

I’m on Fycompa. I’m on a high dose. I’m taking 14 mg’s of it . My Epileptologist said that, for most people 12mg is the max.

Before raised my dosage up anymore, she told my wife and I to pay attention to my behavior or emotions ( one of the side effects ) . If I we notice any changes in those, we have to let my Epileptologist know.

posted September 14, 2021
A MyEpilepsyTeam Member

Absolutely terrible drug. my neurologist added fycompa (8mg) into my medication mix 2 years ago and nothing but trouble with it since. It made my depression much worse, gave me horrible mood swings and made me really aggressive. I put on about 28 kilos within 3-4 months of starting it and the list goes on. I would say AVOID!!!! fycompa at all costs

posted October 13, 2021
A MyEpilepsyTeam Member

did you experience any of the side effects?

posted October 5, 2021
A MyEpilepsyTeam Member

No

posted September 14, 2021

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