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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question 💭
Los Angeles, CA
September 14, 2021
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A MyEpilepsyTeam Member

I was taking keppra and limictal and I continued having seizures. Then fycompa was added at 6 mg. It is my miracle drug. I’ve been seizure free for three years.

October 3, 2021
A MyEpilepsyTeam Member

I’m on Fycompa. I’m on a high dose. I’m taking 14 mg’s of it . My Epileptologist said that, for most people 12mg is the max.

Before raised my dosage up anymore, she told my wife and I to pay attention to my behavior or emotions ( one of the side effects ) . If I we notice any changes in those, we have to let my Epileptologist know.

September 14, 2021
A MyEpilepsyTeam Member

Yes,I Started With 8Mgs Since 2017.t's The Best Out Of All The Meds That I Have Ever Taken.

February 4, 2024
A MyEpilepsyTeam Member

There’s a 2 mg and a 12mg pills . So they are a strong little pill
Go to www.drugs.com. . You can find a lot of info on Fycompa on the site

Drugs.com - Prescription Drug Information
Drugs.com - Prescription Drug Information
February 1, 2024
A MyEpilepsyTeam Member

I took it for about 3weeks. I started having weird thoughts that weren't nice. One day I was at the grocery store and a lady cut me off almost hitting me with her cart since she was yapping in her phone. Well I thought about having a knife a jabbing her in the gut. I told my hubby and said I need to get off this med now. So I called my doctor and she said she would send me a schedule to stop it and go back on what I was on. The doctor in the hospital veeg unit at that time put me on it. I wasn't impressed that there set up was like that. This doctor had never seen me, just looked at my records and never said that much to me in patient for the veeg. It was soon after that I switched Neurologists.

January 31, 2024

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