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To
A MyEpilepsyTeam Member asked a question đź’­

Hi guys,
I'm not on any medication at the moment for my tonic clonic and grand mal seizures.
I'm wanting to speak to my Dr about maybe starting Topomax.
Has anyone been on it? Any side effects? Does it help stop seizures?
Did you take topomax in conjunction with other seizure meds or on it's own?
Thanks heaps.

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A MyEpilepsyTeam Member

I Was on Topomax and it had some side effects that were tolerable … Stay strong in time you might be thankful 🙏 🙏

Do EEGs Ever Return To Normal When Seizure Free On Meds Or Will They Always Show “spikes”
A MyEpilepsyTeam Member asked a question đź’­
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A MyEpilepsyTeam Member

My seizures aren’t controlled but all my EEGs are always normal except my extended video EEG

Do The Seizure Apps Work On Apple Watch?
A MyEpilepsyTeam Member asked a question đź’­
My Neurologist Says Migraines, Hormones, And Seizures Are NOT Connected. What Do You Think?
A MyEpilepsyTeam Member asked a question đź’­

I am peri-menapusal. I get more frequent migraines, and more seizures when I should be menstruating.

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A MyEpilepsyTeam Member

Ironically it's a she. I'm grateful that she is moving to Alaska and I have to get a new neurologist
I had read so many posts/blogs about the link between hormones and migraines, as well as… read more

Children Who Have Epilepsy Stop No Help From Med Because Their Brain Not Fully Developed When Did Reach Full About 10 Yrs. Old, It Stopped?
A MyEpilepsyTeam Member asked a question đź’­
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5 Facts About Epilepsy That Aren’t Well Known Read Article...
A MyEpilepsyTeam Member

Rolandic Epilepsy usually ends with menarche, or adolescence. My sister had it.

Does Anyone Have Mood Swings On Pills They're Currently On?
A MyEpilepsyTeam Member asked a question đź’­

I'd like to know how people deal with their mood swings I'm bipolar. My mood was okay at first. I could handle them, But now since I got on Levetiracetam as known as Keppra my mood has been so bad it's like I'm happy one minute next I'm crying then just angry for no reason. My doctor knows and I want to go to a mental health doctor and see what they can do. Please Help Me

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A MyEpilepsyTeam Member

Wow. I never knew that.

Does Anyone Know What, If Any, Fillers Are Used In Generic Medicines?
A MyEpilepsyTeam Member asked a question đź’­

Since I've moved to Australia I've been taking generic keppra and lamictal. I took the same medicine in the USA, but I'm feeling some intense side effects from the generic medicine here. My friend that's a pharmacist said it could be from fillers that are used in the medicine. I'd pay for the name brand but it's very expensive. And then the stress from the financial strain can cause a seizure. Anyway, could there be something in the medicine that I'm not aware of?

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A MyEpilepsyTeam Member

All of my meds are in generic my insurance will not paid for brand name

Epileps, Lyme Disease, And Mold/Mycotoxins Disease
A MyEpilepsyTeam Member asked a question đź’­

I was diagnosed with Epilepsy in 2012/2013. I have been seizure free since then on Keppra. I have since been diagnosed with Lyme Disease, Mold/Mycotoxins disease, and, Chronic Fatigue Syndrome. I am searching for answers to see if anyone else has run into information about the correlation of these disease. Thanks

A MyEpilepsyTeam Member

Hi there. Would you mind posting the link to the research paper? I’m very interested in reading on the possible link between these two conditions. I’ve been doing some research but I can’t find much… read more

Sensitive
A MyEpilepsyTeam Member asked a question đź’­

I have found lately that after a seizure I am so much more sensitive to criticism and to well basically anything emotionally draining.
Am I the only one?
I'm hoping this is normal!

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A MyEpilepsyTeam Member

I feel you

Being A Mother With Epilepsy With A Two Year Old.. How Do Parent With Epilepsy And Feel Confident Of Being By Yourself With Your Child.
A MyEpilepsyTeam Member asked a question đź’­

How does anyone who is a full time parent get by with epilepsy and the fear of having one by yourself with just your child. I have grand mal and partial seizures. I'm to scared to have another child because I'm scared I shouldn't be a mother because of my epilepsy. I've recently also had brain surgery. So I have had a lot of help since my son was born. It's hard to feel like a mother
Is anyone else in this position or know how it feels? My parents help us but they are now in their 70's. They… read more

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A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I wasn't worried about my Pregnancy or my Son having the same Condition that I have b/c at the time my Doctor was in the Houston Medical Center which has some of the best… read more