... Dravet syndrome is most often caused by a mutation (change) in the SCN1A gene, which plays a big role in how neurons (brain cells) send signals to each other. This gene affects sodium channels — a major player in controlling levels of excitation in the brain. When SCN1A doesn’t work correctly, the brain becomes too excitable. ...
How Dravet Syndrome Affects Life Expectancy and Survival Rates
... Dravet syndrome is most often caused by a mutation (change) in the SCN1A gene, which plays a big role in how neurons (brain cells) send signals to each other. This gene affects sodium channels — a major player in controlling levels of excitation in the brain. When SCN1A doesn’t work correctly, the brain becomes too excitable. ...
... References Epilepsy Facts and Stats — Centers for Disease Control and Prevention What Is Epilepsy? ...
... How do you manage your condition while maintaining your lifestyle? Share your experience in the comments below, or start a conversation by posting on your Activities page. ...
... As a parent I cannot control her seizures, I cannot be there every time to hold her hand, pat her back and try and make it all okay. I have to let go, let her be brave, live life and not retreat from challenges or having fun." Have you had moments of letting go just when you needed it most? What helps you 'let go' of things out of your control? ...
The Power of Letting Go of What You Can't Control
... As a parent I cannot control her seizures, I cannot be there every time to hold her hand, pat her back and try and make it all okay. I have to let go, let her be brave, live life and not retreat from challenges or having fun." Have you had moments of letting go just when you needed it most? What helps you 'let go' of things out of your control? ...
... For instance, research shows that biotin, creatine, pyridoxine, and folinic acid can all be used to treat conditions in which that respective nutrient is missing. In other cases, medication may be prescribed to help manage the disorder.Lifestyle changes may be able to help, too. ...
What Are Metabolic Disorders, and How Can They Cause Epilepsy?
... For instance, research shows that biotin, creatine, pyridoxine, and folinic acid can all be used to treat conditions in which that respective nutrient is missing. In other cases, medication may be prescribed to help manage the disorder.Lifestyle changes may be able to help, too. ...
... • "For me, trusting myself is key, the doctors aren't having these experiences, the support system around me all worried and drowning me with pity is not helping me, it brought me to a question, "What is this energy really, and how can I utilize it in my life?" ...
The Importance of Trusting Yourself
... • "For me, trusting myself is key, the doctors aren't having these experiences, the support system around me all worried and drowning me with pity is not helping me, it brought me to a question, "What is this energy really, and how can I utilize it in my life?" ...
Melanie Griffith is among the most recent celebrities to talk about her diagnosis of epilepsy. B...
... What are you tired of hearing? ...
... Some OTC medications used for heartburn or gastroesophageal reflux disease (GERD) may affect how anti-seizure drugs work in the body by changing their levels in the bloodstream. ...
... Joining MyEpilepsyTeam means gaining a support group of thousands of others with epilepsy who understand exactly what you're going through.Here are some conversations from MyEpilepsyTeam members about navigating the holiday season while facing seizures:"Holidays aren't my favorite time of the year, every year." ...
How to Enjoy the Holidays Despite Epilepsy
... Joining MyEpilepsyTeam means gaining a support group of thousands of others with epilepsy who understand exactly what you're going through.Here are some conversations from MyEpilepsyTeam members about navigating the holiday season while facing seizures:"Holidays aren't my favorite time of the year, every year." ...
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