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Top 10 Search Results for "Epidiolex"

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Has Anyone Tried Epidiolex The New CBD Med ?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Chris
I have been taking Briviact and Lamotragine. Epidiolex was available and my Doctor suggested it. The dosage was at first very small. We settled on is 2.5 ML, AM and PM. They would have liked me… read more

CBD Oils Vs. Epidiolex
A MyEpilepsyTeam Member asked a question 💭

My doctor has tried signing me up for the new Epidiolex CBD Oil. I have questions on these topics. Have any of you tried the new Epidiolex and haven't or had any seizures while taking this? What is the difference between this specific "Epidiolex" and other CBD Oils that could be offered?

A MyEpilepsyTeam Member

I was taking a medication when being treated for Breast Cancer. Whatever the AED was, the Cancer doctor had to prescribe the chemo and radiation again. To replace what I was taking, Onfi (Clobazam)… read more

Is It Possible To Shift From Allopathic Medicines Like Keppra Etc To CBD Oil Only?
A MyEpilepsyTeam Member asked a question 💭

I want to be treated my seizures by only CBD oil, as it is organic only, is it possible?

A MyEpilepsyTeam Member

CBD oil or cannabis can't do what real AEDS can to stop epileptic seizures. It can calm central nervous system to ease stress or anxiety. Used as an add on with AEDs only. Organic or not a drug is… read more

Epidiolex
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My interest in it is because my health care insurance just listed it as a covered drug, with a co-pay of $40/month, much cheaper than what I'm spending on CBD right now. At one time my epileptologist… read more

How Successful Has Epidiolex Been In Controlling Your Seizures?
A MyEpilepsyTeam Member asked a question 💭
Epidiolex For Temporal Lobe Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Hi, is anyone using Epidiolex for temporal lobe epilepsy? If so, what dosage of cbd and what other drugs are also being used? Thanks much

A MyEpilepsyTeam Member

I’ve read quite a few studies on cbd and epilepsy. Most revolve around Epidiolex and the dosage they list is between 10mg/kg and 20mg/kg twice a day. I weigh about 170 pounds so that’s about 77kg… read more

Has Anyone Heard Of A New AED Med Called Epidiolex.
A MyEpilepsyTeam Member asked a question 💭

The FDA is suppose to be approving this new medication. From what I read there is suppose to be cannabis in this. Is that true or is it a synthetic version of cannabis. If anyone has an appt, maybe bring it up and get some info off it. I would like to know more about this. I’ll even try and remember when I have my next appt. Thank you

A MyEpilepsyTeam Member

I will do

Sleep
A MyEpilepsyTeam Member asked a question 💭

My son have trouble sleeping. Is this normal in epileptics?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I’m definitely not on the. I’m on 5 other prescriptions brands . 1 or more of those probably have the side effect of my insomnia.

Hopefully, when my DBS power box is on and… read more

Epidiolex Users Would You Share Your Experience ?
A MyEpilepsyTeam Member asked a question 💭

We have been given approval to start epidiolex and understand we will be jumping through the insurance hoops. Keppra had been a debilitating med for my son-depression,anger,weight gain.
I’d like to hear from others that have used this fda approved cbd.

A MyEpilepsyTeam Member

That’s the first thing I said- fiber and probiotics . I don’t even know where you’d get banana flakes. I will be checking up on our progress toward getting this med on Monday so I’ll ask about it.

Does Anyone Take Epidiolex?
A MyEpilepsyTeam Member asked a question 💭

I will ask my brothers Neurologist if they can prescribe Epidiolex, does anyone take this medication? How is it working for you?