My doctor has tried signing me up for the new Epidiolex CBD Oil. I have questions on these topics. Have any of you tried the new Epidiolex and haven't or had any seizures while taking this? What is the difference between this specific "Epidiolex" and other CBD Oils that could be offered?
I was taking a medication when being treated for Breast Cancer. Whatever the AED was, the Cancer doctor had to prescribe the chemo and radiation again. To replace what I was taking, Onfi (Clobazam)… read more
I want to be treated my seizures by only CBD oil, as it is organic only, is it possible?
My interest in it is because my health care insurance just listed it as a covered drug, with a co-pay of $40/month, much cheaper than what I'm spending on CBD right now. At one time my epileptologist… read more
Hi, is anyone using Epidiolex for temporal lobe epilepsy? If so, what dosage of cbd and what other drugs are also being used? Thanks much
The FDA is suppose to be approving this new medication. From what I read there is suppose to be cannabis in this. Is that true or is it a synthetic version of cannabis. If anyone has an appt, maybe bring it up and get some info off it. I would like to know more about this. I’ll even try and remember when I have my next appt. Thank you
I will do
My son have trouble sleeping. Is this normal in epileptics?
@A MyEpilepsyTeam Member , I’m definitely not on the. I’m on 5 other prescriptions brands . 1 or more of those probably have the side effect of my insomnia.
Hopefully, when my DBS power box is on and… read more
We have been given approval to start epidiolex and understand we will be jumping through the insurance hoops. Keppra had been a debilitating med for my son-depression,anger,weight gain.
I’d like to hear from others that have used this fda approved cbd.
That’s the first thing I said- fiber and probiotics . I don’t even know where you’d get banana flakes. I will be checking up on our progress toward getting this med on Monday so I’ll ask about it.
I will ask my brothers Neurologist if they can prescribe Epidiolex, does anyone take this medication? How is it working for you?