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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "Epidiolex" in Q&A. To see all results and access other features, sign up for free.

CBD Oils Vs. Epidiolex

A MyEpilepsyTeam Member asked a question 💭
Williamsburg, VA

My doctor has tried signing me up for the new Epidiolex CBD Oil. I have questions on these topics. Have any of you tried the new Epidiolex and haven't or had any seizures while taking this? What is the difference between this specific "Epidiolex" and other CBD Oils that could be offered?

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A MyEpilepsyTeam Member

Epidiolex is pure CBD Oil, no THC. I know what the dosage is exactly. My Neurologist or Epileptologist would not allow a CBD Oil bought from a store. We would not know how powerful it was, or what I… read more

Epidiolex Prescribed For Refractory Seizures Of Lennox-Gastaut/Dravet Syndrome + Tuberous Schlerosis, Yet Not Epileptics With Refractory

A MyEpilepsyTeam Member asked a question 💭
Calheta, Madeira (Portugal

Seizures (Mesial Tempoal Sclerosis)….why?!?!

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A MyEpilepsyTeam Member

I agree with you have posted and the epilepsy team post, I think it's dif per person, and we each are similar but not the same with the condition we have, but hang in there and try and stay pos, my… read more

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Has Anyone Tried Epidiolex The New CBD Med ?

A MyEpilepsyTeam Member asked a question 💭
Santa Monica, CA
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A MyEpilepsyTeam Member

Chris
I have been taking Briviact and Lamotragine. Epidiolex was available and my Doctor suggested it. The dosage was at first very small. We settled on is 2.5 ML, AM and PM. They would have liked me… read more

Is It Possible To Shift From Allopathic Medicines Like Keppra Etc To CBD Oil Only?

A MyEpilepsyTeam Member asked a question 💭
Brampton, ON. Canada

I want to be treated my seizures by only CBD oil, as it is organic only, is it possible?

A MyEpilepsyTeam Member

I would not trust the CBD oil, because I do not know how much or what is in it. I have never used Marijuana. I did drink when I was in College, but only by nursing 2 drinks of Tom Collins for 4 months… read more

Has Epidiolex Made You Seizure Free?

A MyEpilepsyTeam Member asked a question 💭
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A MyEpilepsyTeam Member

Not on that med, but hang in there and try and stay pos

Does Marijuana Really Help Seizures

A MyEpilepsyTeam Member asked a question 💭
Browns Mills, NJ
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A MyEpilepsyTeam Member

It's helping me some. My doctor put it on it about year or so ago. It hasn't stopped the seizures. But, I do believe it's helping.

Epidiolex Has Anyone On This Forum Received And Tried Epidiolex CBD Oil ? Want To Hear About Your Expreince With It

A MyEpilepsyTeam Member asked a question 💭
Santa Monica, CA
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A MyEpilepsyTeam Member

I tried it once it last for about 7 to 8 months then my mouth started to get a nasty taste in my mouth every time I tuck it. I told my MD about it I stopped talking.

Wondering If Anyone With Hand Tremor, As A Result Of Surgery For Seizure Control, Has Had Any Luck With CBD Products Helping The Tremor?

A MyEpilepsyTeam Member asked a question 💭
St Louis, MO
A MyEpilepsyTeam Member

My seizures are under control but not the tremor. I'm trying a cbd patch now for the hand tremor so I'll see if it helps any.

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Look Into Charlotte's Web I Just Started To Research Myself. We Tried Epidiolex But That Didnt Help.

A MyEpilepsyTeam Member asked a question 💭
New York, NY
Which Types of Epilepsy Can Be Treated With CBD? Read Article...
A MyEpilepsyTeam Member

It also depends on whether CBD will help at all. depending on what you have you may only need the meds the CBD may not help at all.

Has Anyone Been Prescribed Cannabis Medication?

A MyEpilepsyTeam Member asked a question 💭
Deal, UK

I know it can help with epilepsy, 23years ago my rollups fags was spiked with cannabis, and it helped control my seizures, even though I never knew it was in them, I found out I was seeing a drug addict, so I left him after a 4 week, relationship. But now I wish I could have it legally.

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A MyEpilepsyTeam Member

Actually I have not asked for it yet, next time I see them I will if I remember. Thanks, Take care.