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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 Search Results for "Epidiolex"

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Has Anyone Tried Epidiolex The New CBD Med ?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Andreahoekstra what is an rso? You commented the epiduolex was 500/monthly

CBD Oils Vs. Epidiolex
A MyEpilepsyTeam Member asked a question 💭

My doctor has tried signing me up for the new Epidiolex CBD Oil. I have questions on these topics. Have any of you tried the new Epidiolex and haven't or had any seizures while taking this? What is the difference between this specific "Epidiolex" and other CBD Oils that could be offered?

A MyEpilepsyTeam Member

I was taking a medication when being treated for Breast Cancer. Whatever the AED was, the Cancer doctor had to prescribe the chemo and radiation again. To replace what I was taking, Onfi (Clobazam)… read more

Is It Possible To Shift From Allopathic Medicines Like Keppra Etc To CBD Oil Only?
A MyEpilepsyTeam Member asked a question 💭

I want to be treated my seizures by only CBD oil, as it is organic only, is it possible?

A MyEpilepsyTeam Member

CBD oil or cannabis can't do what real AEDS can to stop epileptic seizures. It can calm central nervous system to ease stress or anxiety. Used as an add on with AEDs only. Organic or not a drug is… read more

Has Anyone Heard Of A New AED Med Called Epidiolex.
A MyEpilepsyTeam Member asked a question 💭

The FDA is suppose to be approving this new medication. From what I read there is suppose to be cannabis in this. Is that true or is it a synthetic version of cannabis. If anyone has an appt, maybe bring it up and get some info off it. I would like to know more about this. I’ll even try and remember when I have my next appt. Thank you

A MyEpilepsyTeam Member

I will do

Sleep
A MyEpilepsyTeam Member asked a question 💭

My son have trouble sleeping. Is this normal in epileptics?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I’m definitely not on the. I’m on 5 other prescriptions brands . 1 or more of those probably have the side effect of my insomnia.

Hopefully, when my DBS power box is on and… read more

Does Anyone Take Epidiolex?
A MyEpilepsyTeam Member asked a question 💭

I will ask my brothers Neurologist if they can prescribe Epidiolex, does anyone take this medication? How is it working for you?

Epidiolex Users Would You Share Your Experience ?
A MyEpilepsyTeam Member asked a question 💭

We have been given approval to start epidiolex and understand we will be jumping through the insurance hoops. Keppra had been a debilitating med for my son-depression,anger,weight gain.
I’d like to hear from others that have used this fda approved cbd.

A MyEpilepsyTeam Member

That’s the first thing I said- fiber and probiotics . I don’t even know where you’d get banana flakes. I will be checking up on our progress toward getting this med on Monday so I’ll ask about it.

Medical Marijuana?
A MyEpilepsyTeam Member asked a question 💭

Hi I just got approved for my medical marijuana card for epilepsy and I have no idea how to use it for medical purposes. Does anyone else use it? And what do you use Capsules, flower, extract etc. And what strain/percentage of thc to cbd?

A MyEpilepsyTeam Member

I have been taking Epidiolex, which does not have the THC in it. I know the dose I am taking. That makes me feel better.
Leslie

What Are Side Effects Of Epidiolex?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

John,

My jobs were generally low pay and low wage. Sears and one other company gave me Health Insurance. Otherwise, I was on my own.

In a way I am lucky. Before Medicare kicked in, the only… read more

Epidiolex
A MyEpilepsyTeam Member asked a question 💭

Does someone can tell me is this medication anti-Seizure is good ? i need to know cause my daughter is taking lamotrigine and she has still having absent seizures which is scary to me because i have to work and leave her alone at home with 15 years old, her Primary care doctor doesn’t want to help me to filling up for any FLMA or any help and she knows my daughter needs. plus i have no family im by myself with my daughter, no help

A MyEpilepsyTeam Member

Great to hear that you graduated from high school, college and got a good job after all of those challenges!