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Top 10 Search Results for "Epidiolex"

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CBD Oils Vs. Epidiolex

CBD Oils Vs. Epidiolex

My doctor has tried signing me up for the new Epidiolex CBD Oil. I have questions on these topics. Have any of you tried the new Epidiolex and haven't or had any seizures while taking this? What is the difference between this specific "Epidiolex" and other CBD Oils that could be offered?

A MyEpilepsyTeam Member said:

We don't get the epidiolex here in Canada however, I have been taking CBD oil and have am having 20+ less seizures a month I was having up to 36 a month. I can't believe I'm going to say this but… read more

posted over 3 years ago

Medical Marijuana

Medical Marijuana

Has anyone taken any medical Marijuana meds? What are the pros and cons?

A MyEpilepsyTeam Member said:

I am on a low dose of Epidiolex. They would have liked to double it because they thought I might be having seizures and not remembering them. The Epidiolex has helps.I am also on Onfi, Lamotragine… read more

posted 2 months ago

TSA Flying With Medication.

TSA Flying With Medication.

I'm flying for the first time since having epilepsy. As far as flying with medication & VNS do I HAVE to bring the original bottle, or can I bring them in a pill box ? Thanks to anyone who responds.

A MyEpilepsyTeam Member said:

I have not traveled, but now take Epidiolex. There are separate containers that would hold a bottle and two syringes. As far as ID is concerned, I have a nice MedicAlert Bracelet and now carry a card… read more

posted 3 days ago
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Has Anyone Heard Of A New AED Med Called Epidiolex.

Has Anyone Heard Of A New AED Med Called Epidiolex.

The FDA is suppose to be approving this new medication. From what I read there is suppose to be cannabis in this. Is that true or is it a synthetic version of cannabis. If anyone has an appt, maybe bring it up and get some info off it. I would like to know more about this. I’ll even try and remember when I have my next appt. Thank you

A MyEpilepsyTeam Member said:

I will do

posted about 1 year ago

Epidiolex

Epidiolex

Has anyone on here been using this?
I've found some research on it but I'd like to know peoples personal experiences?

A MyEpilepsyTeam Member said:

never heard of it is it a new medication ?

posted 3 months ago

Cannabis And Anti Seizure Medication

Cannabis And Anti Seizure Medication

Hey is anyoje using cannabis and still other pharmaceutical anti seizure meds? Or are those using cannabis using only cannabis? If so how is it going, any ijteractions? Theres a part of me that wants to ask my dr to see if can start using cannabis to treat my seizures instead of my other meds, cause i want to just be on one thing that works not three or four to make it work.

A MyEpilepsyTeam Member said:

It has always helped me.

posted 14 days ago

Is Cannabis Or CBD Legal In Your State?

Is Cannabis Or CBD Legal In Your State?

Tonight there is a PBS subject of NOVA on(and I am sure that is on again at other times and dates on PBS) for those of you interested in the United States. Here is the summary and the link
One in seven adults in the United States uses CBD, but laws governing cannabis use vary widely
While millions of people can freely use cannabis recreationally or for medicinal purposes, others are being jailed for possession of the substance. As state-legalized cannabis spreads, NOVA investigates the… read more

A MyEpilepsyTeam Member said:

im allergic to the smell of it i get migraines

posted 5 months ago

I Want To Know Some Of The Side Effect Of Some Of The Meds I Take.

I Want To Know Some Of The Side Effect Of Some Of The Meds I Take.

I was diagnosed with Epilepsy, severe sleep apnea, Lupus, sjogren's syndrome. I take 2 x 1000mg of divalproex and 2 x 200mg of Hyroxychloroquine per day. Plus 2 baby aspirin for another autoimmune decease. I feel very fatigued, unmotivated, and sad. I feel like it’s my medication that is causing this. Anyone else have same side effects?

A MyEpilepsyTeam Member said:

I am taking both medications, and was told Medicinal Cannabis makes the Onfi more powerful. The dosage was lessened slightly. I know that lack of sleep is a major trigger for me. I do not sleep as… read more

posted 2 months ago