Epidiolex is a new medication and it is not easy to get insurance to cover unless you have certain conditions that contribute to the seizures. I have Tuberous Schlerosis and I am the only patient my doctor has with the condition and taking the medication. One caveat is that even if insurance covers the medication, the average co-pay in my area is 1200-1300 for a 30-day supply. I am on a fixed income, so I was made aware of the fact that the company that makes the medication does have a program (Jazz Cares) what can provide the medication for free if you meet certain income requirements. It was a game changer for me because it allowed me to reduce the dose of the lacosemide that I was taking (and not feeling quite as groggy).

CeCe.
I have been on so many medications and AEDs for seizures. I was diagnosed at 7 and am now 71. I understand they were first testing Epidiolex with young children, and it did reduce frequenty and severity of seizures. My new Neurologist said it was also being used for people like myself. I did not get enough control taking everything else. I hope you have a Neurologist or Epileptologist who observe and listens well. Their being able to clearly explain what is or will happen is very important. Good luck.

The best thing to do is talk to your son’s Dr. , to see if he’s qualified or if the medical insurance will allow him to.

I tried getting on it 4 or 5 years ago and my insurance wouldn’t accept . I had to have a more sever form of Epilepsy, like Dravet Syndrome.

There's always a reason why it's not a great idea to just go chopping and changing meds. The way I look at it now cannabis oil (epidolex) is basically just another med. That does actually have its own issues. Yes it can be better but it really depends on what they are trying to do.

With all due respect, if he were my child I would follow the recommendations of his neurologist.