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A MyEpilepsyTeam Member asked a question 💭
Pittsburgh, PA

I've been on disability for a while now unfortunately and I miss working I have a 2 year degree already but it's not in anything in particular but it covers a lot of programs pre requesites I'm hoping I won't have to be on disability forever as I don't want to lose my mind? Which basically happened to my mom when she stopped working but I'm afraid to go back to work full time and try to go to college especially while pregnant and my epilepsy still being iffy and another possible surgery after… read more

5 hours ago
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MyEpilepsyTeam

What a lot to be navigating all at once — pregnancy, epilepsy, a possible surgery, and planning for the future. That takes real strength, and it makes complete sense that you're thinking ahead.

The good news is that going to college does not automatically disqualify you from receiving disability benefits. The Social Security Show Full Answer

What a lot to be navigating all at once — pregnancy, epilepsy, a possible surgery, and planning for the future. That takes real strength, and it makes complete sense that you're thinking ahead.

The good news is that going to college does not automatically disqualify you from receiving disability benefits. The Social Security Administration (SSA) looks at your ability to engage in "substantial gainful activity" (basically, earning above a certain income threshold), not whether you're studying. Here are some key things to keep in mind:

- SSDI and SSI have different rules — SSDI is based on work history and payroll taxes, while SSI is income-based. Which one you're on matters for how college might affect your benefits.
- Attending college alone won't end your benefits — but earning income above the SSA's limit could.
- Some rules do vary by state, especially around Medicaid eligibility tied to SSI.
- Talking to an SSA specialist is really the best move — they can walk through exactly how many hours you could work (like a part-time campus job) without risking your benefits. College can also be a great middle ground — building toward future work without jumping straight into full-time employment. Given everything on your plate right now (pregnancy, potential surgery, and managing epilepsy), going part-time could be a gentler way back in.

Just be mindful that college life can bring stress and sleep disruption, both of which are known seizure triggers, so pacing yourself really matters.

5 hours ago
A MyEpilepsyTeam Member

Good post, I have been there about working and haven't for a few years, but I have played with the thought of doing, but I am ok with the condition I have and my situation at hand, I have lost my wife and am a widower and do miss her, but I hang in there and try to stay pos and so can you amen, but it work out in the wash as they say and be patient and don't try and rush things, that is my opinion to you, so stay pos and amen

2 hours ago
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member thank you it kind of makes me nervous to go back but I definitely don't want to be a forever housewife I feel bad making my husband bring in most of the money especially with the fact my mother in law wants to watch our child to help if I want to go back to work or if I start having other problems(seizures), I don't get much off of disability, maybe it's the feeling of being useful again I miss? I don't even know so I'll get there input too

5 hours ago
A MyEpilepsyTeam Member

Good post, I agree with the epilepsy team mentioned about it, but I would suggest getting other people's opinions here which is ok with that and then ask your doc about it and the social security administration and the college part of it and contact them after the doc part and social security administration first and then go from there about it and good luck with your outcome with it my opinion here amen

5 hours ago
A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member I actually did let my job know before they separated with me and they knew I was going to be undergoing epilepsy surgery but none of us expected for it to make me worse and the job I had I wasn't technically qualified for but I worked up the ranks to get it so it's one of those things where I'll never be able to get a job like that again. The crazier part is I was actually employed by the hospital who did the surgeries so they knew what was going on but they still threw HR at me and the doctor who did the surgeries refused to sign paperwork to let me get 'accommodated time away from work" because I worked through all my PTO and FMLA Because they couldn't get me controlled enough to be able to go even a day without one and because I decided to go to a different hospital and not trust him he refused to sign this while I waited to get taken in by the other hospital so I never want to work for them ever again issue is there huge especially in Pittsburgh you can't go to far without seeing one and my only other job experience outside of healthcare is in retail

1 hour ago (edited)

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