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My husband has Nocturnal TC and partial awareness seizures. Taking Topamax and Diladin. Is this aura?

September 23
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A MyEpilepsyTeam Member

I had nocturnal seizures in the past. No, I do not believe that they are " auras " The only way that I can explain the auras that I experience is that I have a knowledge of " somethin' ain't right" It's a sensation, it's a knowing. When I'd experience a nocturnal episode I would be VERY tired after them. I mean very tired. In fact, it's my body's way of telling me that I have experienced an episode. By just how tired I am or I become.
My husband knows the symptoms well enough now to know when I'm having challenges. As far as partial awareness seizures, Yep! I had those too. Still I advocate for knowing your triggers. and try your best to avoid them. Lori, you can be a tremendous help to your husband. A tremendous help. Please I suggest in doing so. Ask him what he wants, needs from you. EDUCATE yourself about his condition. Like what you're doing here. But, with as much as you want to help him. Remember that he doesn't want to be babied, or pampered of get the are you ok? every time he may be just in thought. ( happens a lot with focal seizures )
I wish you great success on this journey. Remember that there are many here who are willing to help in the best way that we can. πŸ™‚ Y'all are not alone.

September 24
A MyEpilepsyTeam Member

Thank you so much! I really appreciate the response!

September 24
A MyEpilepsyTeam Member

Never had Nocternal but I have had "partial awareness. The thing with these though is even though you may have some awareness during the seizure they normal get recorded as Impaired focal even if the impairness is very short.

September 23
MyEpilepsyTeam

What your husband is experiencing β€” that strange sensation of feeling like he's moving while staying still β€” does sound like it could be an aura. An aura is actually the very beginning of a seizure, happening before full awareness is affected.

Auras can feel very different from person to person. Some common aura experiences Show Full Answer

What your husband is experiencing β€” that strange sensation of feeling like he's moving while staying still β€” does sound like it could be an aura. An aura is actually the very beginning of a seizure, happening before full awareness is affected.

Auras can feel very different from person to person. Some common aura experiences include:

- Unusual smells, tastes, or sounds that aren't really there
- A sudden rush of fear or anxiety
- A feeling of dΓ©jΓ  vu (like a moment has happened before)
- Strange physical sensations, like movement when there is none A MyEpilepsyTeam member shared that their nocturnal seizures are often followed by waking up drenched in sweat β€” showing just how varied these experiences can be from person to person.

It's really worth bringing this new sensation up with his neurologist as soon as possible. Tracking when it happens, how long it lasts, and what follows can give the doctor valuable clues. It may also be a sign that his current treatment plan needs a closer look.

September 23

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