@A MyEpilepsyTeam Member
I had the RNS for 7 or 8 years. I never really saw a difference in my seizures but I just have 1 or 2 seizures per a month. If you have more seizures you could see a bigger improvement. If youโd like to know my full history with the RNS let me know.
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A MyEpile...
September 18
My being in front of the computer for too long I can become confused. I need to take more breaks and do other things.
September 18
Responsive Neurostimulation (RNS) is worth knowing about! It's a device implanted in the skull that monitors brain activity and delivers a tiny electrical pulse within milliseconds when it detects possible seizure activity โ essentially trying to stop a seizure before it fully starts. The results from studies are Show Full Answer
Responsive Neurostimulation (RNS) is worth knowing about! It's a device implanted in the skull that monitors brain activity and delivers a tiny electrical pulse within milliseconds when it detects possible seizure activity โ essentially trying to stop a seizure before it fully starts. The results from studies are encouraging. Here's a quick summary of what research shows:
- After 2 years, seizures were cut in half on average
- After 7 years, two-thirds of people experienced a 50% or more reduction in seizures
- Benefits tend to improve the longer someone uses it
It's generally recommended for adults (18+) with medication-resistant focal seizures who either aren't candidates for traditional epilepsy surgery, or who've already had surgery but still experience seizures. One MyEpilepsyTeam member shared that after their VNS was inserted, seizures became controlled over time โ and many people report similar gradual improvements with neurostimulation devices in general.
It's great that there's no pressure to decide right away. Taking time to weigh the options and have a thorough conversation with a neurologist is always a smart move. ๐
September 18