Powered By
I just got RNS implanted in August . I have had about 5 to 6 seizures . Since
We have talked with those who have RNS and have learned they have mixed feelings .. some say it helps ., others not so much .. ALL agree RNS is excellent at detecting seizures and tracking them ., how effective it be at stopping them varies significantly .. ranging from a grand decrease in seizures to no real change .. although this does improve with time in some cases ., biggest problem appears to be with the batteries wearing out sooner than expected ., good news here is the RNS may be upgraded with battery change ., and the newer models are working better .. many people are working very hard to improve the RNS .. most we talked with feel being able to recharge the batteries without another procedure to replace them would be an awesome improvement indeed! From two on MyEpilepsy Team .. William and Jen💜💙🕊
Yes, RNS (Responsive Neurostimulation) has been shown to help reduce seizures, but the benefits typically increase over time. Research shows that after two years of therapy, RNS cuts seizures in half for many people. Even better results are seen after longer periods - after seven years, about two-thirds of people experience Show Full Answer
@A MyEpilepsyTeam Member
I understand what you mean as I’ve had my share of surgeries too
@A MyEpilepsyTeam Member, Even though I still have the VNS implant I could have it removed. Having surgeries from head to toes, I don't want to go through any more surgeries unless it's a need to have done.
When I had the VNS implant I was informed I still would until for a time period. It's probably the same with RNS.
Join
Your Privacy Choices
