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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A MyEpilepsyTeam Member asked a question πŸ’­
London, UK

Unsure of when to go to hospital! I have been to hospital so many times, been told I'm fine, and sent my way. When do I stop trusting myself?
I guess I understand my body better than most, having been told so many times what is wrong with me.
When do I actually worry? When is the time to be stressed? When is the time to get more help?
When do I go back to the hospital?

September 1
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A MyEpilepsyTeam Member

If you know how long your seizures last. Say 5+ minutes. That when your your brain starts to loose oxygen.

If you get overdosed fore what ever the reason is another time you should get checked into the hospital .

September 1
MyEpilepsyTeam

Trusting yourself when you have epilepsy is genuinely powerful β€” and it sounds like you've built real knowledge about your own body over time. That instinct matters. As one MyEpilepsyTeam member put it: "I know my triggers... I am the one who had the seizure."

That said, there are clear situations where going to the hospital Show Full Answer

Trusting yourself when you have epilepsy is genuinely powerful β€” and it sounds like you've built real knowledge about your own body over time. That instinct matters. As one MyEpilepsyTeam member put it: "I know my triggers... I am the one who had the seizure."

That said, there are clear situations where going to the hospital is the right call, no second-guessing needed:

- A seizure lasts longer than 5 minutes
- Seizures happen back-to-back without recovery in between (status epilepticus)
- You don't return to normal after a seizure
- You experience a new type of seizure you haven't had before
- You're injured during a seizure
- A seizure happens in water
- You're pregnant

For everything else, your gut is a valid guide. If something feels *different* or *off* compared to your usual pattern, that's worth acting on.

The best ongoing strategy is keeping open communication with your neurologist so you can build a personal plan together β€” one that reflects *your* seizure patterns specifically.

You're not overreacting by going. You're also not failing by knowing when you don't need to. Both take wisdom. πŸ’™

September 1

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