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I had a lot of them at night as the doctors were trying all the different medicines. For me, the Zonisamide had moved all the seizures to night and in bed. This was harder at first. Something you need to notice is which side of the body is affected more. This should determine which direction you lie on your bed. The phone or calling unit has to be reachable; for me, the seizures came from the left temporal lobe, so the right side recovered more slowly because the left controls the right side of the body. So I set up the bedroom so that when the left side of my body was movable, I could sit up and hit the phone while lying down. Depending on the severity, this would usually have effects long into the day. That is why I had lists and "normal orders" for things I did, so I knew I did everything. Finally, I had brain surgery, and I have been seizure-free ever since. Next week will be 12 years seizure-free.
Oh wow. That sounds amazing. 12 years!!! They're still trying to get my meds to the right levels. I always have injuries on my left side except the tongue biting which is both. Really bad memory loss, although that is becoming more constant. I always feel pretty bad the day after and sometimes into the next day. I write down everything I have to do as I'd forget things all the time otherwise.
Nocturnal tonic-clonic seizures (also called grand mal seizures) are more common than many people realize — they affect up to 15% of people with epilepsy. It's actually quite a lot to manage alongside daytime absence seizures, so it makes sense to want to understand what's happening.
During a tonic-clonic seizure, there are Show Full Answer
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