Powered By
I think my relatives were bright enough to know I couldn't control that. In fact, my cousin has epilepsy, too.
I'd just tell them, "The day I have control of my seizures I'll make sure you're not around, but that day is nowhere in sight."
I’ve had friends and families say that to me . But it was in a joking matter. Although in the back of their mind they are partially serious. They also know my seizures could happen anytime and anywhere
Sarah0, born 1971 epileptic and learned relatives/family don't bother to research or respect scientific facts. 2018 one older sister said it's inconvenient when she was my emergency contact and I had a Clonic tonic seizure in front of her at my home and she called 911 and left. In postictal I texted her I would use Uber to pick me up from ER. Not to look bad she arrived at ER to drive me home only to suggest I euthanize myself. We haven't spoke since. Stroke 2006, 2 brain surgeries 2007 to remove a tumor and many relatives think my health conditions are for attention. I wouldn't wish what I've been through on to a stranger let alone a relative. Volunteer 12 years for Alzheimer's, because I care. You're not alone on this journey
My wife has told me nit to have a seizure around my granddaughters.
That's a really tough situation, and it's completely understandable to feel hurt by that. Seizures aren't something anyone can just switch off — if they were, the line at that switch would be very long!
The reality is that seizures are unpredictable, and that can be scary for people who don't understand them. Sometimes fear Show Full Answer
Join
Your Privacy Choices
