Hallo Vince.. William and Jen here .. we be sad to hear someone be blaming you for causing your seizure .. any one thinking that do not understand what a seizure be .. or why they be .. simple fact be .. if WE knew how to stop them ., or even if they be coming ., we would do all we could to avoid them.. being on the verge of dying be no fun .. and that be where we all be finding ourselves .. and totally unaware it happen until we wake up on the floor .. in hospital .. or in ambulance .. or somebody be telling us we had one .. epilepsy be both cruel and impartial .. and NO ONE be making the choice to be having a seizure .. it be horrific to have a condfition .. that no one truly understand why you have it .. only guesses mostly .. and no one can really fix it ., although many do try hard .. anyone who say this to you .. that you be causing it or making it happen .. and blaming you
.. does not love you and is not your friend .. only Our Father know what seizure be ., and He will not push you away or blame you ., He will comfort you and help you to fight .. and there be those on here who will understand and be your friend and fight beside you .. for each of you who understand .. and care.. and know what pain and mental suffering fighting this be .. my Jen and me be grateful .. we all be here for each other Vince .. on here you never be alone .. hugs and prayers from William and Jen 💜💙🤗🤗🕊🕊

You be right Randy .. those differences make each of us who we be .. and tbose similarities make us brathairs .. brothers.. we all be in this together .. each on our own journey .. yet each holdimg out a hand to the other.. loving each other as Our Father teach us to be doing .. you be a grand friend and brother to me and Jen dear Randy.. it be a blessing to us to be knowing you ., we wish you a good weekend .. your friends and neighbors from Michigan .. William and Jen💜💙🤗🤗🕊🕊

Ach .. thank you for the blessing mo brathair Sean ., I sure be needing them of late .. and it make us sad anyone eoukd ever think you fake a seizure .. when you be unaware they even happen .. unless your Mum or someone at work be telling you ., that be a good idea to ask tbem to pinch you though .. bet they get a big shock when you not react and they know they be wrong! Refractory be no fun .. although I be getting some help from Lamotrogine.. helps me feel a bit calmer .. so holds stress down and help to prevent seizure I be thinking .. you take care mo bro .. Jen and me send you hugs and prayers with our quiet love .. your forever friends William and Jen 💙💛🤗🤗👐👐👐⛵🌱⚘🌻🕊🕊

@A MyEpilepsyTeam Member
God Bless you too William. I’m sure Jen helps you battle all of the occasions when you have a seizure. I’ve always told people that if they think I’m faking a seizure to pinch me their hardest. When I don’t react to it I’m obviously having a seizure. I’ve always had refractory epilepsy too. I send you both love ❤️, hugs 🤗 and prayers 🙏
🌺💙🌹Your Forever Friend, Sean💚🌼💜

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A MyEpile...

Randy and Sean .. this be William ..I be having LTL ictal asystole .. very rare type of epilepsy left temporal lobe ..I be having both focal aware and unaware seizures .. mostly nocturnal .. so I be blessed there.. worst of all be the awful scream aura I get before daytime seizures . I can literally clear a room like happen at library once .. I trying to explain what seizure be to a group of people whilst giving a talk ., and end up giving them a demo ., scream and all .. last time I ever be asked to speak again .. just one of the million reasons I appreciate my awesome wife .. she stick by me tbrough thick and thin .. giving me the patience, empathy and quiet love I be needing to get through this .. I be refractory and no meds help .. and my ictal asystole that affect my heart, lungs xnd breathing mean no surgery I be surviving .. what I got is quite rare neurologist say .. I be yet to find anyone else be having it .. so I relate well to you both .. how anyone could be saying this be faked is beyond me .. Jen say only way they be understanding how a seizure be is to suffer one themselves ., gum beannaiche adh Dia thu Randy and Sean .. may God Bless you both, and all others suffering seizures ..keeping you all safe.. William and Jen🕊💜💙🕊