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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

How do some of you manage to be happy with this condition i can too but when im in my room it hits all at once and i get angry 🤦🏻‍♂️☹️

A MyEpilepsyTeam Member asked a question 💭
Houston, TX
April 13
 · 
Reactions
A MyEpilepsyTeam Member

I walk and talk to family

April 13
A MyEpilepsyTeam Member

I look at it as it’s something I have and can’t do anything about it. The same as my cancer. There’s nothing I can do about it, so why should I feel bad about it? I don’t have a problem about having to live with it, so why should anyone else try to make me feel guilty or bad about it. Plus I tell myself that there’s always someone else out there who has something way worse than I do, so why would I throw myself a pity party? I can only try to keep it manageable by taking my meds at the same time everyday, mark down when I have a seizure , listen to my body and pay attention to when my dog alerts on me. So why waste my time and energy being angry about something I can’t control? Sure, I didn’t ask or want to have it, but I do and there’s nothing I can do about it.

April 13
A MyEpilepsyTeam Member

Yeah i manage my meds intake but its just something we cant control that’s what makes some of us angry if u read my story you’ll understand just how out of nowhere it happened just wishing i was free

April 14
MyEpilepsyTeam

How do you manage to stay happy with epilepsy when anger and frustration hit when you're alone?

It's completely normal to feel angry about living with epilepsy. Many people experience these waves of emotion, especially in private moments when everything hits at once.

Finding small ways to take control can help build patience Show Full Answer

How do you manage to stay happy with epilepsy when anger and frustration hit when you're alone?

It's completely normal to feel angry about living with epilepsy. Many people experience these waves of emotion, especially in private moments when everything hits at once.

Finding small ways to take control can help build patience and resilience over time. Self-care isn't selfish—it's necessary. This might look like:

* Taking a walk around the block
* Starting a gratitude journal
* Spending 15 minutes of alone time doing something you enjoy
* Connecting with others who understand what you're going through

A MyEpilepsyTeam member shared: "One step at a time. Patience is key to overcoming epilepsy. Stay positive and strong!"

Another member noted that support makes a huge difference: "Thanks to this support system, I learned that with a little patience and our combined knowledge/experiences, things that look grim one second can look manageable the next."

Remember, managing epilepsy takes time, and everyone's journey is different. Being kind to yourself and letting go of negativity when you can makes a real difference. You're not alone in feeling this way.

April 13

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