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Well it’s little Friday hoping for me today of feeling less fatigued as well as less of the weakness in my legs than what I was feeling all

A MyEpilepsyTeam Member asked a question 💭
Hayes, VA

day yesterday that caused me to stay in my pjs and bath robe all day yesterday. Hopefully I’ll be able to be a little more active today. Keeping my fingers crossed.

April 2
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Answer Summary

Members rallied around someone experiencing debilitating leg weakness and fatigue, validating the unpredictable and exhausting nature of... Read more

Members rallied around someone experiencing debilitating leg weakness and fatigue, validating the unpredictable and exhausting nature of living with neurological conditions. Several members encouraged pursuing a wheelchair for mobility and energy conservation, especially when a neurologist dismissed the need, with practical advice including seeking a second opinion, considering Legal Aid for insurance approval, and advocating firmly for tools that improve quality of life and safety. A recurring theme was the deep frustration of not being understood by medical providers or loved ones, coupled with the community's shared understanding that conserving energy and maintaining independence matter more than pushing through pain.

A MyEpilepsyTeam Member

Quinn .. from all you and everyone has said .. seems you would be best off in a wheelchair .. if your current neurologist will not listen ., get yourself one who will .. you have a truly difficult case ., as you deal with two serious issues ., with thel leg weakness getting worse ., you need a wheelchair .. as a walker or cane helps balance .. yet your problem is also losing strength in your legs .. this is stressing you bigtime .. and that makes everything worse ., the wheelchair will improve both your mobility and your confidence ., you will feel better just knowing you be safe when you want to be mobile.. go for it Quinn ., maybe you will need to go to Legal Aid to help you get this ., as we feel stronghly this will sure improve your quality of life and your safety ., we are praying for you Quinn ., that this will happen ., you will get your "wheels" and the mobility freedom you deserve .. hugs and prayers from William and Jen💜💙🤗🤗🕊🕊

April 5
A MyEpilepsyTeam Member

Jen and me feel bad for the pain and weakness you be suffering Quinn .. we send you hugs of hope and prayers for strength and pain relief.. we send you peace and calm of quiet love .. William and Jen💜💙🤗🤗🕊🕊

April 2
A MyEpilepsyTeam Member

I sure hope you're more active & have strength again today. 🙏🤞

April 2
MyEpilepsyTeam

How can you manage fatigue and leg weakness with epilepsy?

It sounds like you're dealing with some tough fatigue and leg weakness. Many people with epilepsy experience these symptoms, and there are ways to help manage them.

Here are some strategies that might help you feel more energized:

- Track your symptoms in a seizure Show Full Answer

How can you manage fatigue and leg weakness with epilepsy?

It sounds like you're dealing with some tough fatigue and leg weakness. Many people with epilepsy experience these symptoms, and there are ways to help manage them.

Here are some strategies that might help you feel more energized:

- Track your symptoms in a seizure diary to identify patterns with fatigue, sleep quality, and medication timing
- Eat regular, healthy meals and snacks to maintain energy levels throughout the day
- Stay hydrated to help boost energy
- Follow a consistent routine with your medication timing
- Aim for 8-10 hours of quality sleep each night
- Avoid common seizure triggers like alcohol and caffeine

A MyEpilepsyTeam member shared their approach: "Eat healthily, get eight to ten hours of sleep a night, no alcohol, take medication daily and at the same time every day, and take care of your mental health."

If your fatigue and weakness continue, it's important to talk with your doctor. They can review your treatment plan and make adjustments to help improve your energy and overall well-being.

Hoping today brings you more energy and strength!

April 2
A MyEpilepsyTeam Member

And I am so proud of you for finding people to try and help you. It seems like every time I attempt that, any doctors or nurses just do not have an answer - and they do not plan on trying to do so. You are dealing with a condition that is so very different. I’m glad you have found people who realize how you need different testing and treatment, you definitely deserve such.

April 4

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