Powered By
Numerous meds over the years I’m halfway tempted to tell my doctor that I want it done due to the fact what I’m on now is still not controlling my focal seizures all the way. I’m from what I’ve read the RNS device stops seizures before they get full-blown.
How well has RNS worked for people with focal seizures?
You're right that RNS is designed to detect and stop seizures before they fully develop. It's specifically approved for adults 18 and older with medication-resistant focal seizures.
The results show that RNS benefits increase over time:
* After 2 years: seizures reduced Show Full Answer
Conducraig , at birth I was already diagnosed with hydrocephalus so as of right now I already have a VP shunt on the side of my right head. From what I’m reading the RNS is not going to interfere with that, but I’m also reading that focal seizures can actually happen than one part of the brain.. which I have. Not knowing where on my brain that these focal seizures are occurring. I just feel one seizure is too many for me so if I just have one or two a year that’s still good enough for me to look into the RNS device. I’m 50 years old now and I’ve been dealing with this since I was a little fella not to mention I’ve gone through so many different medication changes over the years too.
@A MyEpilepsyTeam Member
I understand what you mean. I’ve tried every medication that exists for epilepsy out of 30+ years but I’m drug resistant. I’ve been home prisoned my whole life 😭
My son had RNS implanted on Feb 16th-4 weeks ago. March 6th his neuro turned it on lowest setting. You still upload daily even without it being on because it's capturing data, it showed he's having 1-3 seizures a day about 4-5 days a week! Mostly focal. We haven't seen a tonic clinic since it's been on and some days he naps for hours so we feel he's had many but it gives him a stimulus. Didn't have to have a seen, just EMU for 5 days,3T MRI, and a PET scan, psycholog testing that took 7 hrs. He recovered fabulously, a few headaches and hair along incision line is already covering the staple lines! The home the next day:-)
See if your doctor will consider it for you,his is on right top of head.
Sean2, I don’t know if it’ll work for me or not do the fact I already have a medical device on the right side of my brain which is a VP Shunt but the simple fact is I’ve been through so many meds over the years. It’s not even funny not to mention my lower body is constantly feeling fatigued. I’m having a lot of weakness through my legs. Plus experiencing off-balance at times. It’s pretty much keeping me confined in the house a lot so right now I don’t know what to do.
Join
Your Privacy Choices
