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I can. Relate with you. The VNS didn’t work for me neither. After the DBS was approved by the FDA in the U.S. , my Dr. and I agreed to do that. 2022 go for the DBS . It’s been working well. My seizures have decreased by a lot since.
I got my rns in 2016. It took a long time to start working. Surgery Was at UPMC by dr Richardson before he was a professor at Harvard for epilepsy. Kind of a tester as it wasnt meant to stop grand mals. But it has. I used to have 4or5 a month. Every month in the ICU. It took years for me to notice a difference. My last grand mals were 3 after my first battery change in 2020. I have noticed all the other effects now. I know when I'm having focal aware seizures. It's stops them in there tracks. Most of the time. But I'm glad I did it after telling myself and drs for months no surgeries. I would still wake up in ICU afterwards but just rip out the breathing tubes and leave. Like nothing happened.
My VNS never helped so I later got an RNS. I’ve continued to have some seizures after 7 years though
What are the experiences with RNS for drug-resistant seizures when VNS hasn't worked?
It sounds like you're exploring RNS after your VNS hasn't provided the relief you need. Many people in similar situations have found RNS helpful, though it's important to know what to expect.
How RNS works differently:
RNS is designed Show Full Answer
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